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Discover data collection instruments and related materials in the Research Tools database. Please see our FAQ to learn more and email us at [email protected] to contribute your published or unpublished research tools.
191 - 194 of 194 Research Tools
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GENEtic Utility (GENE-U) Scale
Year: 2024Show moreSmith and colleagues developed the GENEtic Utility (GENE-U) scale to assess the perceived utility of genetic screening from the perspective of those who are undergoing risk-based or population-…
Research Population: Adults, ChildrenValidation(s):Smith, H. S., Rubanovich, C. K., Robinson, J. O., Levchenko, A. N., Classen, S. A., Malek, J., Buchanan, A. H., Biesecker, B., Brothers, K. B., Wilfond, B. S., Rini, C., Bloss, C. S., McGuire, A. L., & Knight, S. J. (2024). Measuring perceived utility of genomic sequencing: Development and validation of the GENEtic Utility (GENE-U) scale for adult screening. Genetics in Medicine, 26(11), Article 101240.
Smith, H. S., Rubanovich, C. K., Robinson, J. O., Levchenko, A. N., Classen, S. A., Malek, J., Biesecker, B., Brothers, K. B., Wilfond, B. S., Rini, C., Knight, S. J., McGuire, A. L., & Bloss, C. S. (2024). Measuring perceived utility of genomic sequencing: Development and validation of the GENEtic Utility (GENE-U) scale for pediatric diagnostic testing. Genetics in Medicine, 26(8), Article 101146.
Contact: [email protected] -
Attitudes Toward Genomics and Precision Medicine (AGPM)
Year: 2025Show moreDuBois and colleagues developed the Attitudes Toward Genomics and Precision Medicine (AGPM), a novel measure which evaluates attitudes toward activities such as genetic testing, collecting informat
Research Population: AdultsCitation:DuBois, J. M., Mozersky, J., Antes, A., English, T., Parsons, M. V., & Baldwin, K. (2021). Attitudes toward genomics and precision medicine. Journal of Clinical and Translational Science, 5(1), Article e120. https://doi.org/10.1017/cts.2021.774
Validation(s):- DuBois, J. M., Mozersky, J., Antes, A., English, T., Parsons, M. V., & Baldwin, K. (2021). Attitudes toward genomics and precision medicine. Journal of Clinical and Translational Science, 5(1), Article e120. https://doi.org/10.1017/cts.2021.774
- Anghel, E., Pineros-Leano, M., McDonald, I. R., Dwyer, A. A. (2025). Psychometric properties of a culturally adapted Spanish version of the Attitudes Toward Genomics and Precision Medicine instrument. Public Health Genomics. Advance online publication. https://doi.org/10.1159/000546101
Contact: [email protected] -
Genetic Technologies Questionnaire (GTQ)
Year: 2022Küchenhoff and colleagues created the Genetic Technologies Questionnaire (GTQ), a scale to measure ethical judgements about genetic technologies.
Research Population: AdultsCitation:Küchenhoff, S., Doerflinger, J. & Heinzelmann, N. (2022). The genetic technologies questionnaire: Lay judgments about genetic technologies align with ethical theory, are coherent, and predict behaviour. BMC Medical Ethics, 23, Article 54. https://doi.org/10.1186/s12910-022-00792-x
Validation(s):- Küchenhoff, S., Doerflinger, J. & Heinzelmann, N. (2022). The genetic technologies questionnaire: Lay judgments about genetic technologies align with ethical theory, are coherent, and predict behaviour. BMC Medical Ethics, 23, Article 54. https://doi.org/10.1186/s12910-022-00792-x
Contact: [email protected] -
Early Detection of Genetic Risk (EDGE) Study Interview Guide
Year: 2024Show moreConner and colleagues developed this interview guide to better understand primary care providers’ readiness to conduct population-based risk assessment and offer genetic testing for hereditary canc
Research Population: AdultsCitation:Conner, S., Theoryn, T., Dusic, E., Beers, F., Knerr, S., Norquist, B., Shirts, B. H., Bowen, D., Swisher, E. M., & Wang, C.(2024). Primary care provider practices, attitudes, and confidence with hereditary cancer risk assessment and testing: A mixed methods study. Genetics in Medicine, 27(4), Article 101307. https://doi.org/10.1016/j.gim.2024.101307