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Discover data collection instruments and related materials in the Research Tools database. Please see our FAQ to learn more and email us at [email protected] to contribute your published or unpublished research tools.
1 - 3 of 3 Research Tools
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GENEtic Utility (GENE-U) Scale
Year: 2024Show moreSmith and colleagues developed the GENEtic Utility (GENE-U) scale to assess the perceived utility of genetic screening from the perspective of those who are undergoing risk-based or population-…
Research Population: Adults, ChildrenValidation(s):Smith, H. S., Rubanovich, C. K., Robinson, J. O., Levchenko, A. N., Classen, S. A., Malek, J., Buchanan, A. H., Biesecker, B., Brothers, K. B., Wilfond, B. S., Rini, C., Bloss, C. S., McGuire, A. L., & Knight, S. J. (2024). Measuring perceived utility of genomic sequencing: Development and validation of the GENEtic Utility (GENE-U) scale for adult screening. Genetics in Medicine, 26(11), Article 101240.
Smith, H. S., Rubanovich, C. K., Robinson, J. O., Levchenko, A. N., Classen, S. A., Malek, J., Biesecker, B., Brothers, K. B., Wilfond, B. S., Rini, C., Knight, S. J., McGuire, A. L., & Bloss, C. S. (2024). Measuring perceived utility of genomic sequencing: Development and validation of the GENEtic Utility (GENE-U) scale for pediatric diagnostic testing. Genetics in Medicine, 26(8), Article 101146.
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Race Attributes in Clinical Evaluation (RACE) Scale
Show moreBonham and colleagues developed the Racial Attributes in Clinical Evaluation (RACE) scale to assess the degree to which health professionals employ race in their clinical decision making.
Research Population: Physicians, Nurse Practitioners, NursesValidation(s):Bonham, V. L., Sellers, S. L., Woolford, S. (2014). Physicians’ knowledge, use, and beliefs about race and genetic variation: New measures and new insight. BMC Health Services Research, 14, Article 456.
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Instrument for assessing mass media reporting of disease-related genetic discoveries
Year: 2002Show moreInstrument for assessing mass media reporting of disease-related genetic discoveries is a 38-item tool for evaluating the quality and balance of media stories reporting genetic discoveries related
Research Population: N/AValidation(s):- Mountcastle-Shah, E., Tambor, E., Bernhardt, B. A., Geller, G., Karaliukas, R., Rodgers, J. E., & Holtzman, N. A. (2003). Assessing mass media reporting of disease-related genetic discoveries: Development of an instrument and initial findings. Science Communication, 24(4), 458-478.