Discover data collection instruments and related materials in the Research Tools database. Please see our FAQ to learn more and email us at [email protected] to contribute your published or unpublished research tools.
31 - 40 of 207 Research Tools
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CSER Phase 1: Parental Consent for Child to Participate in a Research Study, Minor Subjects- Relatives of Study Subject - NCGENES: A Next-Generation Sequencing Platform for Genetic Diagnosis and Research
Year: 2014This parental consent form from the NCGENES: A Next-Generation Sequencing Platform for Genetic Diagnosis study is designed for the minor relatives of NCGENES study participants that received a gene
Research Population: Parents -
CSER Phase 1: Assent Form: (Ages 7-14) Relatives of a Study Subjects - NCGENES: A Next-Generation Sequencing Platform for Genetic Diagnosis and Research
Year: 2014This assent form from the NCGENES: A Next-Generation Sequencing Platform for Genetic Diagnosis study is designed for the 7 - 14 year old relatives of NCGENES study participants with a genetic test
Research Population: Children -
CSER Phase 1: Assent Form: (Ages 15-17) Relatives of a Study Subjects - NCGENES: A Next-Generation Sequencing Platform for Genetic Diagnosis and Research
Year: 2014This assent form from the NCGENES: A Next-Generation Sequencing Platform for Genetic Diagnosis study is designed for the adolescent (aged 15-17) relatives of NCGENES study participants with a genet
Research Population: Adolescents -
CSER Phase 1: Consent Form: (Adult Subject) Relatives of a Study Subjects - NCGENES: A Next-Generation Sequencing Platform for Genetic Diagnosis and Research
Year: 2014This consent form from the NCGENES: A Next-Generation Sequencing Platform for Genetic Diagnosis study is designed for the adult relatives of NCGENES study participants with a genetic test result co
Research Population: Adults -
CSER Phase 1: Consent Form (Colorectal Cancer/Polyposis) - The NEXT (New EXome Technology in Medicine) Medicine Study
Year: 2014This consent form for the NEXT Medicine Study is designed for individuals with colorectal cancer/polyposis or a close family member with the syndrome.
Research Population: Adults -
CSER Phase 1: Consent Form (Endometrial/Uterine Cancer) - The NEXT (New EXome Technology in Medicine) Medicine Study
Year: 2014This consent form for the NEXT Medicine Study is designed for individuals with endometrial/uterine cancer or a close family member with this type of cancer.
Research Population: Adults -
CSER Phase 1: Research Participant's Authorization to Disclose/Release Genetic Information - The NEXT (New EXome Technology in Medicine) Medicine Study
Year: 2013The Research Participant's Authorization to Disclose/Release Genetic Information Form for the NEXT (New EXome Technology in Medicine) Medicine Study authorizes the principal investigator of th
Research Population: Adults -
CSER Phase 1: Genetic Information Nondiscrimination Act (GINA) Fact Sheet: "GINA & You"
Year: 2010This fact sheet describes the rights protected by the Genetic Information Nondiscrimination Act of 2008 in an easy to read format.
Research Population: Adults -
CSER Phase 1: Tumor Mutation Explanation Card
Year: 2012This short explanation card defines a tumor mutation and describes what parents of pediatric patients can expect from a tumor mutation report.
Research Population: Parents -
CSER Phase 1: Inherited Mutation Explanation Card
Year: 2012This short explanation card defines an inherited mutation and describes the information that parents might find on their child's inherited mutation report.
Research Population: Parents