The Research Tools database facilitates access to commonly used instruments for empirical ELSI scholarship.
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CSER Phase 1: Consent Form - CanSeq, The use of sequencing to guide the care of cancer patients study
This consent form for the CanSeq study included permission to perform genetic tests on tissue specimens that had already been collected and stored as part of clinical care or other research studies
CSER Phase 1: Research Consent Form for Social and Behavioral Research - The Institutional and Professional Impact of Genomic Sequencing in Cancer Care
The Institutional and Professional Impact of Genomic Sequencing in Cancer Care examined the impact of the use of whole-exome sequencing (WES) on physicians and institutional systems at the Dana-Far
CSER Phase 1: Male Research Consent and Authorization Form - NextGen: Clinical Implementation of Carrier Testing Using Genome Sequencing
This research consent and authorization form for enrollment in the NextGen trial by male partners of female Kaiser Permanente patients who requested carrier testing for inherited condition or disea
CSER Phase 1: Female Research Consent and Authorization Form - NextGen: Clinical Implementation of Carrier Testing Using Genome Sequencing
This research consent and authorization form for enrollment in the NextGen trial by female Kaiser Permanente patients who requested carrier testing for inherited condition or disease before getting
CSER Phase 1: Informed Consent Document - Genomic Diagnosis in Children with Developmental Delay
This informed consent document for parents and minors in the Genomic Diagnosis in Children with Developmental Delay study includes standard consent language plus consent to storage of specimens for
CSER Phase 1: Consent form - Personalized Oncology Through High-throughput Sequencing: MI-ONCOSEQ (Michigan Oncology Sequencing Center)
This consent form for the Personalized Oncology Through High-throughput Sequencing: MI-ONCOSEQ (Michigan Oncology Sequencing Center) study includes authorization to create cell lines from participa
CSER Phase 1: Adult/parent consent with assent form - Personalized Medicine Based on Molecular Profiling of Patients with Cancer
This consent/ assent form for adults, adolescents, and parents of minors in the Personalized Medicine Based on Molecular Profiling of Patients with Cancer study includes consent to the use of tumor
CSER Phase 1: Parental Consent for Child to Participate in a Research Study, Minor Subjects- Relatives of Study Subject - NCGENES: A Next-Generation Sequencing Platform for Genetic Diagnosis and Research
This parental consent form from the NCGENES: A Next-Generation Sequencing Platform for Genetic Diagnosis study is designed for the minor relatives of NCGENES study participants that received a gene
CSER Phase 1: Assent Form: (Ages 7-14) Relatives of a Study Subjects - NCGENES: A Next-Generation Sequencing Platform for Genetic Diagnosis and Research
This assent form from the NCGENES: A Next-Generation Sequencing Platform for Genetic Diagnosis study is designed for the 7 - 14 year old relatives of NCGENES study participants with a genetic test
CSER Phase 1: Assent Form: (Ages 15-17) Relatives of a Study Subjects - NCGENES: A Next-Generation Sequencing Platform for Genetic Diagnosis and Research
This assent form from the NCGENES: A Next-Generation Sequencing Platform for Genetic Diagnosis study is designed for the adolescent (aged 15-17) relatives of NCGENES study participants with a genet