Explore our curated collection of resources including top publication outlets for ELSI scholars, Centers of Excellence in ELSI Research, ELSI databases and research centers, genome research consortia, statutes and legislation related to genomics, and bioethics resources.
61 - 69 of 69 Additional Resources
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This educational resource offers a summary of some United States (federal) laws and some specific state laws that offer a variety of legal protections related to genetic/omic and mobile/digital health-related information. It was created as part of the "Consumer Protections for Genomics & Precision Health" project funded by NHGRI Grant No. R01HG011051 in September 2022 (except for a few updates made in June 2023 that are noted).
TAGS:
- Jennifer K. Wagner
- NHGRI
- GINA
- HIPAA
- genetic privacy
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This educational resource offers a summary of some United States (federal) laws and some specific state laws that offer a variety of legal protections related to genetic/omic and mobile/digital health-related information. It was created as part of the "Consumer Protections for Genomics & Precision Health" project funded by NHGRI Grant No. R01HG011051 in September 2022 (except for a few updates made in June 2023 that are noted).
TAGS:
- Jennifer K. Wagner
- NHGRI
- GINA
- HIPAA
- genetic privacy
-
This educational resource offers a summary of some United States (federal) laws and some specific state laws that offer a variety of legal protections related to genetic/omic and mobile/digital health-related information. It was created as part of the "Consumer Protections for Genomics & Precision Health" project funded by NHGRI Grant No. R01HG011051 in September 2022 (except for a few updates made in June 2023 that are noted).
TAGS:
- Jennifer K. Wagner
- NHGRI
- GINA
- HIPAA
- genetic privacy
-
This educational resource offers a summary of some United States (federal) laws and some specific state laws that offer a variety of legal protections related to genetic/omic and mobile/digital health-related information. It was created as part of the "Consumer Protections for Genomics & Precision Health" project funded by NHGRI Grant No. R01HG011051 in September 2022 (except for a few updates made in June 2023 that are noted).
TAGS:
- Jennifer K. Wagner
- NHGRI
- GINA
- HIPAA
- genetic privacy
-
This educational resource offers a summary of some United States (federal) laws and some specific state laws that offer a variety of legal protections related to genetic/omic and mobile/digital health-related information. It was created as part of the "Consumer Protections for Genomics & Precision Health" project funded by NHGRI Grant No. R01HG011051 in September 2022 (except for a few updates made in June 2023 that are noted).
TAGS:
- Jennifer K. Wagner
- NHGRI
- GINA
- HIPAA
- genetic privacy
-
This ASRM Ethics Committee opinion published in 2018 outlines key points to consider in the development of identification and disclosure of sex policies at clinics that perform PGT with a primary medical goal.
TAGS:
- ethics committee opinion
- preimplantation genetic testing
- PGT
- sex policies
- American Society for Reproductive Medicine
- ASRM
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This ASRM Ethics Committee Report published in 2019 highlights the need for shared information in the consent process, addresses preferences expressed by donors over who should receive their gametes and embryos, and considers the responsibilities that donors have to their own families, to recipient families, and to children conceived with their gametes and embryos.
TAGS:
- ethics committee opinion
- embryo donation
- gamete donation
- American Society for Reproductive Medicine
- ASRM
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This ASRM Ethics Committee opinion published in 2018 offers key points to consider in the determination of the ethical permissibility of PGT-M for adult-onset conditions.
TAGS:
- ethics committee opinion
- preimplantation genetic testing
- PGT
- monogenic defects
- American Society for Reproductive Medicine
- ASRM
- adult-onset conditions
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The National Society of Genetic Counselors (NSGC) provides practice guidelines and resources on several topics, a Practice Guideline Development Manual and COI Disclosure Form, a list of topics for which practice guidelines are in development, and links to retired NSGC Practice Guidelines.
TAGS:
- practice guideline
- manual
- evidence review
- disclosure survey
- expert review
- proposal form