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Explore our curated collection of resources including top publication outlets for ELSI scholars, Centers of Excellence in ELSI Research, ELSI databases and research centers, genome research consortia, statutes and legislation related to genomics, and bioethics resources.

551 - 560 of 799 Additional Resources

  • The provision in the original version of the bill pertaining to the use of genetic information by carriers was amended. The enacted legislation establishes a workgroup on maintaining the protections established by the Affordable Care Act. May 13, 2019 Approved by the Governor - Chapter 418. Effective June 1, 2019. Bill Status: Enacted

    • state bill
    • bill
    • bill status enacted
    • Maryland
    • health insurance coverage
    • Affordable Care Act

  • Amends the definition of personal information used in the state data privacy act. Personally identifiable information is defined to include an individual's DNA. Died. Bill Status: Died

    • state bill
    • bill
    • bill status died
    • Maryland
    • genetic privacy
    • genetic information
    • identification

  • A hospital or related institution may not discriminate in admitting or providing personal care based on genetic information. Died. Bill Status: Died

    • state bill
    • bill
    • bill status died
    • Maryland
    • personal care
    • genetic information

  • Enacts the Online Consumer Protection Act. Defines biometric information to include an individual's DNA. Died. Bill Status: Died

    • state bill
    • bill
    • bill status died
    • Maryland
    • genetic privacy
    • DNA samples
    • DNA information
    • biometric information
    • genetic information

  • A person who directly or indirectly advertises or solicits business for diagnostic laboratory tests or procedures is a covered entity under HIPAA and must make certain disclosures. The law does not apply to germline genetic or genomic testing for the analysis, diagnosis or prediction of human disease. May 13, 2019 Approved by the Governor - Chapter 413. Effective October 1, 2019. Bill Status: Enacted

    • state bill
    • bill
    • bill status enacted
    • Maryland
    • HIPAA
    • Diagnosis
    • Disease
    • genetic testing

  • Requires managers and supervisors in the Legislative and Executive branches of State government to immediately report certain incidents of workplace bullying, including bullying based on genetic information. 3/11/2019 Unfavorable Report by Finance; Withdrawn. Bill Status: Died

    • state bill
    • bill
    • bill status died
    • Maryland
    • employment nondiscrimination

  • Enacts the Online Consumer Protection Act. Defines biometric information to include an individual's DNA. Died. Bill Status: Died

    • state bill
    • bill
    • bill status died
    • Maryland
    • genetic privacy
    • Online Consumer Protection Act

  • A business that owns or licenses computerized data that includes personal information such as genetic information of an individual must conduct a reasonable and prompt investigation upon the breach of the security of a system. April 3, 2019 Unfavorable Report by Finance. Bill Status: Died

    • state bill
    • bill
    • bill status died
    • Maryland
    • genetic privacy
    • Data
    • genetic information
    • Security

  • The provision in the original version of the bill pertaining to the use of genetic information by carriers was amended. The enacted legislation establishes a workgroup on maintaining the protections established by the Affordable Care Act. May 13, 2019 Approved by the Governor - Chapter 417. Effective October 1, 2019. Bill Status: Enacted

    • state bill
    • bill
    • bill status enacted
    • Maryland
    • health insurance nondiscrimination
    • amendment
    • Affordable Care Act

  • Establishes the Healthy Maryland Program. Requires the Board to establish requirements and standards to consistent with state nondiscrimination laws, including those pertaining to genetic information. Participating providers may not refuse to provide health care services on the basis of genetic information. Died. Bill Status: Died

    • state bill
    • bill
    • bill status died
    • Maryland
    • genetic privacy
    • Healthy Maryland program
    • nondiscrimination
    • health care services
    • genetic information