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Explore our curated collection of resources including top publication outlets for ELSI scholars, Centers of Excellence in ELSI Research, ELSI databases and research centers, genome research consortia, statutes and legislation related to genomics, and bioethics resources.

661 - 670 of 799 Additional Resources

  • This bill creates personal property rights human biological specimens, defined as tissues, organs and body parts from which DNA may be isolated and requires written informed consent for the use of biological specimens in medical or genetic research. Consent forms must provide at least three options, including consent for a specific research project, consent for future research projects that are yet undefined, or consent for future research projects that are yet undefined, contingent on the research entity returning to seek specific written informed consent if the project is or could be considered controversial. The bill allows limited use of biological specimens for the calibration of laboratory equipment. Measure failed. Bill Status: Died

    • state bill
    • bill
    • bill status died
    • Minnesota
    • genetic privacy

  • This bill adds supplemental Medicare policies to health insurance plans covered under the state Genetic Discrimination Act. HF 1853, which was approved by the Governor, was substituted for this bill. Bill Status: Died

    • state bill
    • bill
    • bill status died
    • Minnesota
    • health insurance nondiscrimination

  • This bill requires any person who provides a specimen collection kit to a resident of Minnesota for the purpose of collecting genetic material to perform a genetic test to first provide the resident with the disclosure, as described in the legislation. The bill also requires a study to determine which companies and laboratories are providing direct-to-consumer genetic tests to Minnesota residents. Measure failed. Bill Status: Died

    • state bill
    • bill
    • bill status died
    • Minnesota

  • This bill requires any person who provides a specimen collection kit to a resident of Minnesota for the purpose of collecting genetic material to perform a genetic test to first provide the resident with the disclosure, as described in the legislation. The bill also requires a study to determine which companies and laboratories are providing direct-to-consumer genetic tests to Minnesota residents. Measure failed. Bill Status: Died

    • state bill
    • bill
    • bill status died
    • Minnesota

  • During the period in which residual newborn screening specimens is retained, the health department may use blood samples and test results for newborn screening program operations. Newborn screening operations are defined to specifically exclude research, public health studies, or the development of new newborn screening tests. Signed by the Governor on May 10, 2012. Bill Status: Enacted

    • state bill
    • bill
    • bill status enacted
    • Minnesota
    • Newborn screening

  • This bill amends the definition of genetic test in the statutes regarding government data practices. Measure failed. Bill Status: Died

    • state bill
    • bill
    • bill status died
    • Minnesota
    • genetic privacy

  • Requires the Minnesota Insurance Marketplace to provide any data subject asked to supply private data with a notice of rights related to the handling of genetic information. The Minnesota Insurance Marketplace is a state health benefit exchange as described in section 1311 of the federal Patient Protection and Affordable Care Act (Public Law 111-148), and further defined through amendments to the act and regulations issued under the act. March 21, 2013 Approved by the Governor. Bill Status: Enacted

    • state bill
    • bill
    • bill status enacted
    • Minnesota
    • genetic privacy

  • This bill specifies that newborn screening activities are subject to state law on the collection, storage, use, and dissemination of genetic information. A new statute section also is created on the treatment of biological specimens and health data held by the health department and health boards. The new statute section allows the commissioner to collect, use, store, and disseminate biological specimens and health data to conduct research in a manner that is consistent with the federal common rule for the protection. Died. Bill Status: Died

    • state bill
    • bill
    • bill status died
    • Minnesota
    • genetic privacy
    • Newborn screening

  • Medical data collected, stored, used, or disseminated by or filed with the commissioner in connection with a claim for workers' compensation benefits does not constitute genetic information for the purposes of section 13.386 of the statutes. Signed by the Governor on May 18, 2013. Bill Status: Enacted

    • state bill
    • bill
    • bill status enacted
    • Minnesota

  • Amends the statute governing the collection, storage, use and dissemination of genetic information by adding a section to specify that newborn screening activities are subject to the law. Requires the Commissioner of Health to evaluate the scientific and medical validity of a comprehensive and sustainable long-term storage and use plan for newborn screening test results. Approved by the Governor May 23, 2013. Bill Status: Enacted

    • state bill
    • bill
    • bill status enacted
    • Minnesota
    • Newborn screening