Explore our curated collection of resources including top publication outlets for ELSI scholars, Centers of Excellence in ELSI Research, ELSI databases and research centers, genome research consortia, statutes and legislation related to genomics, and bioethics resources.

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Visit this site to view a comprehensive list of active and inactive Centers of Excellence in ELSI Research (CEER) funded by the NHGRI. CEERs convene multi-disciplinary investigators to address new or persistent ELSI issues and support the next generation of ELSI researchers.

  • NHGRI
  • CEER
  • RFA
  • Centers of Excellence

Jeffrey R. Botkin is Principal Investigator of the Utah Center of Excellence in Ethical, Legal and Social Implications Research (UCEER) at the University of Utah in Salt Lake City, UT, USA. UCEER supports research and teaching of issues relevant to population screening for genetic conditions in the healthcare of women and children.

  • CEER
  • population genetic screening
  • women
  • Children
  • Jeffrey Botkin
  • prenatal
  • genetic conditions
  • Pediatrics
  • University of Utah

Ellen W. Clayton and Bradley Malin are Co-Directors of the Center for Genetic Privacy and Identity in Community Settings (GetPreCiSe), an NIH Center of Excellence in Ethics Research at Vanderbilt University Medical Center. The GetPreCiSe Center integrates a diverse community of interdisciplinary scholars to enhance understanding on the debate about genetic privacy and identity and further inform policy.

  • CEER
  • genetic privacy
  • genetic identity
  • genomic data re-identification
  • Policy
  • Vanderbilt

Gail Geller and Jeffrey Kahn are Co-Principal Investigators of the Center for Bridging Infectious Disease, Genomics, and Society (BRIDGES) at the Johns Hopkins Berman Institute of Bioethics. BRIDGES focuses on the ethical, legal, and social implications of genomic advances in the context of infectious diseases prevention and control.

  • CEER
  • Gail Geller
  • Jeffrey Khan
  • infectious diseases
  • genomic technology
  • Privacy
  • outbreak control
  • disease prevention
  • Johns Hopkins

Paul Appelbaum is Principal Investigator of the ELSI Center for Psychiatric, Neurologic & Behavioral Genetics at Columbia University Medical Center. The center investigates the ELSI challenges that come with using genetic information in the context of psychiatric, neurologic, and behavioral (PNB) disorders which are often highly stigmatized.

  • CEER
  • Psychiatric
  • Neurologic
  • Behavioral
  • PNB Genetics
  • stigma
  • Paul Appelbaum
  • Columbia

Paul Spicer is Principal Investigator of the Center for the Ethics of Indigenous Genomic Research (CEIGR). CEIGR examines how genomic information used in medical care may impact American Indian and Alaska Native communities. The center additionally hosts tools to create culturally appropriate research and education programs regarding genomics and indigenous communities.

  • CEER
  • Alaska Native
  • American Indian
  • Indigenous
  • culture
  • education program
  • medical care
  • Paul Spicer
  • Oklahoma