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Explore our curated collection of resources including top publication outlets for ELSI scholars, Centers of Excellence in ELSI Research, ELSI databases and research centers, genome research consortia, statutes and legislation related to genomics, and bioethics resources.

1 - 10 of 11 Additional Resources

  • A trainee-led team affiliated with the Stanford University Genetics Department (primary instructors: Roshni Patel and Rachel Ungar and secondary instructors: Alanna Pyke, Alvina Adimoelja, Anjali Narain, Justin Gomez-Stafford, and Naiomi Hunter) developed this course on genetics, ethics and society. The learning goals of this course include: connecting the historical context of genetics research to its modern-day practice; evaluating the social and ethical implications of genetics research; and analyzing how societal norms and structures, along with personal identities, biases, and responsibility, impact the conduct of scientific research.

    • syllabus
    • Genetic Determinism
    • Race
    • ancestry
    • Social Responsibility
    • Community Engagement
    • Gender Identity
    • medicalization
    • genetic privacy
    • medical mistrust

  • This course provides an introduction to key issues relating to genomics in society. It explores social, ethical and policy questions raised by genomics in the context of: synthetic biology, genetics and crops, genetic modification of domestic animals, genetics and conservation, human genetic therapies and human enhancement, and privacy and genetic information. The course was developed by Claire Palmer, Penny Riggs, T.J. Kasperbauer, Jeremy Johnson, Lauren Cifuentes, Seung Won Park, and Jamie McQueen.

    • Synthetic Biology
    • syllabus
    • Genetic Modification
    • Conservation
    • gene therapy
    • human enhacement
    • genetic privacy
    • NSF

  • This course developed by Stephanie Malia Fullerton introduces students to select biomedical innovations and invites sustained consideration of the diverse ethical and social implications surrounding their development and potential use.

    • precision medicine
    • syllabus
    • Gene Editing
    • prenatal testing

  • This core developed by Jennifer B McCormick examines fundamental concepts in scholarship on the ethical, legal/policy, social implications of genetic and genomic science. These include how the field of genetics has evolved into the current era of translational genomics and personalized medicine, genetic discrimination and stigmatization, existing legal/regulatory frameworks, race and ethnicity, return of research results, return of incidental findings from genomic sequencing, individual’s right to know/right not to know, and data ownership and sharing.

    • syllabus
    • translational genomics
    • personalized medicine
    • genetic discrimination
    • return of results
    • Incidental Findings
    • data sharing
    • data ownership

  • This core course offered by the Institute for Public Health Genetics provides an introduction to the ethical, legal, social, and policy issues arising as genetic or genomic knowledge and technologies are developed and made available to individuals and populations. Students will learn to identify and anticipate potential ethical, legal, social, financial, and policy considerations that arise with emerging technologies when applied in clinical, research, consumer, and public health contexts. In this course, we will examine public health genetics issues from diverse disciplinary perspectives

    • syllabus
    • Newborn screening
    • Eugenics
    • Polygenic risk scores

  • This course developed by Karen Schindler explores the ethical, lega, and social implications of emerging genetic technologies.

    • syllabus
    • precision medicine
    • Direct to Consumer Genetic Testing
    • Henrietta Lacks

  • This course developed by William Allen and Marta Wayne covers topics pertaining to ethics, science policy, and translation in genetics research, as well as responsible conduct of research.

    • syllabus
    • Eugenics
    • genetic discrimination
    • data management

  • This course covers legal issues related to genetics and genomics research, practice, and policy. The course objectives include addressing the response of the law and the legal system to advances in genomic and genetic information and technologies and anticipating and positing legal responses for the future.

    • syllabus
    • Eugenics
    • legal theory
    • forensics
    • genetic privacy
    • direct-to-consumer genetic testing
    • Genetic Exceptionalism
    • genetic discrimination
    • GINA
    • liability

  • This course developed by Stephanie Brown covers ethical and social issues related to research and clinical practice in medical genetics and genomics.

    • syllabus
    • virtue ethics
    • deontology
    • Utilitarianism
    • Casuistry
    • Beneficence
    • non-maleficence
    • ART
    • pre-implantation genetic testing
    • right to not know

  • This course explores ethical and social issues as they relate to genetics and genomics in both clinical and public health contexts.

    • syllabus
    • precision medicine
    • Community Engagement
    • Polygenic risk scores
    • data privacy
    • HIPAA
    • Informed Consent
    • Disability studies
    • global health