Skip to main content

Explore our curated collection of resources including top publication outlets for ELSI scholars, Centers of Excellence in ELSI Research, ELSI databases and research centers, genome research consortia, statutes and legislation related to genomics, and bioethics resources.

761 - 770 of 799 Additional Resources

  • This bill prescribes the requirements for surrogate decision makers to give informed consent for certain human subject research. Measure failed. Bill Status: Died

    • state bill
    • bill
    • bill status died
    • Nevada

  • This bill requires health insurers to comply with the Genetic Information Nondiscrimination Act. Measure failed. Bill Status: Died

    • state bill
    • bill
    • bill status died
    • Nevada
    • health insurance nondiscrimination

  • This bill requires health insurers to comply with the Genetic Information Nondiscrimination Act. Signed by the Governor May 29, 2009. Bill Status: Enacted

    • state bill
    • bill
    • bill status enacted
    • Nevada
    • employment nondiscrimination
    • health insurance nondiscrimination
    • genetic privacy

  • An insurer, carrier or society (1) must offer or issue a health benefit plan or hospital or medical service contract to any person regardless of the health status of the person; and (2) may not adjust premiums, deductible, copay or coinsurance on the basis of genetic information relating to the insured or the covered spouse or dependent of the insured. Health status includes genetic information relating to the person. 6/16/2017 Vetoed by the Governor. Bill Status: Vetoed

    • state bill
    • bill
    • bill status vetoed
    • Nevada
    • health insurance coverage

  • Adds genetic information to the list of categories included in an apprenticeship agreement for which discrimination is prohibited. Requires the Office of Workforce Innovation to suspend for one year the right of any employer, association of employers or organization of employees acting as agent for an employer to participate in a program under the provisions of apprenticeship program after notice and hearing, finds that the employer, association or organization has discriminated against an individual based on genetic information. June 5, 2019 Approved by the Governor. Chapter 377. Bill Status: Enacted

    • state bill
    • bill
    • bill status enacted
    • Nevada
    • employment nondiscrimination

  • It is an unlawful employment practice for an employer, a labor organization or an employment agency to (1) ask or encourage a prospective or current employee or member of the labor organization to submit to a genetic test, (2) require or administer a genetic test to a person as a condition of employment or membership, or (3) deny, alter the terms, conditions or privileges of, or terminate employment or membership based on genetic information.

    • state statute
    • Nevada
    • employment nondiscrimination

  • It is unlawful to obtain any genetic information of a person without informed consent with some exceptions, including for use in a study where the identities of the persons from whom the genetic information is obtained are not disclosed to the person conducting the study. It is unlawful to retain genetic information that identifies a person without first obtaining the informed consent with some exceptions. Except as otherwise provided, a person who obtains the genetic information for use in a study must destroy that information upon completion of the study or withdrawal of the person from the study. Criminal penalties and a right to civil action are established for violations.

    • state statute
    • Nevada
    • genetic privacy

  • A health maintenance organization, a carrier serving small employers, a corporation that provides health insurance, individual health insurers and group health insurers may not (1) require an insured person or family member to take a genetic test or disclose whether one has been taken or (2) determine the rates or any other aspect of the coverage or benefits based on genetic information or whether the insured person or member of his family has taken a genetic test. These entities may not establish rules of eligibility based on a health status-related factor, including genetic information, or impose a pre-existing condition exclusion based on genetic information in the absence of a diagnosis. The provisions to not apply to any of the above entities in terms of the issuance of a policy of health insurance that provides coverage for long-term care or disability income. Insurers or organizations that provide health coverage pursuant to sections 689A, 689B, 689C, 695A, 695B, 695C, 695D, and 695F must comply with the federal law, the Genetic Information Nondiscrimination Act.

    • state statute
    • Nevada
    • health insurance nondiscrimination
    • disability

  • This bill restricts the collection of biometric data, including DNA or RNA, by state agencies, municipalities, and political subdivisions. Died. Bill Status: Died

    • state bill
    • bill
    • bill status died
    • New Hampshire
    • genetic privacy

  • This bill restricts the collection, storage, and sharing of student assessment data by the United States Department of Education and the New Hampshire department of education. Student assessment data includes biometric information, which is defined to include DNA. As of October 30, 2014, Interim Study Report: Not Recommended for Legislation in 2014 (Vote 15-0). Bill Status: Died

    • state bill
    • bill
    • bill status died
    • New Hampshire
    • genetic privacy