Explore our curated collection of resources including top publication outlets for ELSI scholars, Centers of Excellence in ELSI Research, ELSI databases and research centers, genome research consortia, statutes and legislation related to genomics, and bioethics resources.

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The African Society of Human Genetics (AfSHG) aims to equip the African scientific community and policymakers with the information and practical knowledge they need to contribute to genomics research and attract global attention to the efforts of African scientists.

  • AfSHG
  • Africa
  • African scientific community
  • biomedical science

The Policy Partnerships Project for Genomic Governance (P3G2) develops and supports policy, ethical and governance frameworks of biobanks, genomic research databases and other similar health and social research infrastructures so as to optimize cross-border access and use. Originating as a consortium and operated as a not-for-profit corporation, P3G2 now undertakes its activities as part of the Centre of Genomics and Policy (CGP) at McGill University.

  • P3G2
  • Biobanks
  • data cataloguing
  • genomic research databases
  • social research
  • ethical frameworks of biobanks

The European Society of Human Genetics (ESHG), a non-profit organization, aims to promote research in basic and applied human and medical genetics, to ensure high standards in clinical practice and to facilitate contacts between all persons who share these aims, particularly those working in Europe. The society organizes the annual European Human Genetics Conference and publishes the European Journal of Human Genetics.

  • ESHG
  • non-profit organization
  • applied medical genetics
  • clinical practice standards
  • Europe

Human Genome Organisation (HUGO) International promotes genomic research within and between nations; fosters scientific exchange, with emphasis on scientifically developing and emerging countries; and supports discourse in the ethics of genetics and genomics.

  • global perspective
  • genetic ethics
  • developing countries
  • emerging countries
  • nation
  • Victor McKusick

The Global Alliance for Genomics and Health (GA4GH) is an international, non-profit alliance of 600+ organizations working to create frameworks and standards to enable the responsible, voluntary, and secure sharing of genomic and health-related data. Find genomic data, regulatory and ethics, and data security toolkits on the GA4GH website.

  • genomic data sharing
  • Human Rights
  • toolkit
  • policy-framing
  • genomic data
  • regulatory
  • data security

GeneWatch UK is a nonprofit policy research and public interest group that monitors the impact of genetic technologies on food, health, agriculture, environment, and society. GeneWatch UK is funded by charitable trusts, the European Commission, commissioned work, and donations and is headed by Executive Director, Helen Wallace.

  • Policy
  • genetic technology
  • food
  • Health
  • agriculture
  • Environment
  • society
  • Helen Wallace