Explore our curated collection of resources including top publication outlets for ELSI scholars, Centers of Excellence in ELSI Research, ELSI databases and research centers, genome research consortia, statutes and legislation related to genomics, and bioethics resources.

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Prohibits a health care service plan contract or a health insurance policy that covers prescription drug benefits from denying or otherwise limiting coverage of a genetically targeted drug for the treatment of Duchenne muscular dystrophy under specified circumstances. Bill Status: Died

  • state bill
  • bill
  • California
  • prescription drug
  • health care plan
  • health insurance policy
  • genetically targeted drug
  • genetic treatment
  • Duchenne muscular dystrophy
  • bill status died

Creates the Healthy California Board, which is responsible for the establishment of the Healthy California program to provide comprehensive universal single-payer health care coverage and a health care cost control system for the benefit of all residents of the state. Consistent with the Unruh Civil Rights Act, the Board must promote nondiscrimination with respect to members and health care providers on the basis of genetic information and other characteristics. Bill Status: Died

  • state bill
  • bill
  • California
  • Healthy California
  • single-payer health care
  • universal health care
  • nondiscrimination
  • genetic information
  • bill status died
  • health insurance nondiscrimination

Requires health care service plans, health insurers, and the State Department of Health Care Services to cover breast and ovarian cancer susceptibility screening as recommended by the United States Preventive Services Task Force. The final version of the bill does not contain a provision found in the introduced version of the bill requiring BRCA testing, if indicated after counseling. 9/27/2018 Vetoed by the Governor. Bill Status: Vetoed

  • state bill
  • bill
  • California
  • health care plan
  • health insurers
  • breast cancer
  • breast cancer screening
  • ovarian cancer
  • ovarian cancer screening
  • cancer coverage

Prohibits discrimination against apprentices or applicants for apprenticeships in the building and construction trade based on genetic information. 9/22/2018 Chaptered by Secretary of State - Chapter 675, Statutes of 2018. Bill Status: Enacted

  • state bill
  • bill
  • California
  • Discrimination
  • nondiscrimination
  • genetic information
  • bill status enacted
  • employment nondiscrimination

Prohibits discrimination in a digital marketplace or otherwise acting upon applications to participate with a digital marketplace as a marketplace contractor based on an individual's genetic characteristics. Bill Status: Died

  • state bill
  • bill
  • California
  • digital marketplace
  • genetic characteristics
  • Discrimination
  • bill status died
  • employment nondiscrimination

Final version of bill did not contain reference to court case, which addressed heritability and genetics, found in first amended version of the bill. Vetoed by the Governor. Bill Status: Vetoed

  • state bill
  • bill
  • California
  • heritability
  • Genetics
  • bill status vetoed

Prohibits licensing boards from requiring an examination or establishing any qualification for licensing that has an adverse impact on any class because of various attributes, including genetic information. 2/3/2020 From committee: Filed with the Chief Clerk pursuant to Joint Rule 56. Bill Status: Pending

  • state bill
  • bill
  • California
  • licensing qualification
  • genetic information
  • bill status pending
  • employment nondiscrimination

Prohibits a person from selling a gene therapy kit unless the seller includes a notice on the seller’s internet website that is displayed to the consumer prior to the point of sale, and on a label on the package, stating that the kit is not for self-administration. Chaptered by Secretary of State. Chapter 140, Statutes of 2019. Effective January 1, 2020. Bill Status: Enacted

  • state bill
  • bill
  • California
  • gene therapy kit
  • gene therapy
  • Gene Editing
  • CRISPR-Cas9
  • CRISPR
  • bill status enacted

Prohibits consideration of genetic characteristics in workers compensation claims to determine the approximate percentage of the permanent disability caused by other factors. Carries over to 2020. Bill Status: Pending

  • state bill
  • bill
  • California
  • genetic characteristics
  • workers compensation
  • permanent disability
  • bill status pending

Amends statute pertaining to security requirements for business that own, license, or maintain personal information about a California resident. This bill would add genetic information to the definition of personal information under the law. 2/24/2020 Referred to Committee on Privacy and Consumer Protection. Bill Status: Pending

  • state bill
  • bill
  • California
  • security requirements
  • genetic information
  • Privacy
  • bill status pending