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Prohibits an individual or group health care service plan contract or health insurance policy issued, amended, delivered, or renewed on or after January 1, 2021, from requiring prior authorization for genetic biomarker testing for an enrollee or insured with metastatic or advanced stage 3 or 4 cancer. 3/2/2020 Referred to Committee on Health. Bill Status: Pending

  • state bill
  • bill
  • California
  • genetic biomarker
  • genetic biomarker testing
  • Cancer
  • stage 3 cancer
  • stage 4 cancer
  • health care
  • bill status pending

Establishes the Commission on the State of Hate. Requires the commission to advise the Legislature, the Governor, and state agencies on, among other things, policy recommendations to promote intersocial education designed to foster mutual respect and understanding among California’s diverse population. Appointees to the commission are comprised of experts in combating hate, intolerance, and discrimination on the basis of various factors such as genetic information. First reading on 2/24/2020. Bill Status: Pending

  • state bill
  • bill
  • California
  • diversity
  • genetic discrimination
  • genetic information
  • intersocial education
  • bill status pending

Requires any contracting entity that contracts with independent contractors to provide services to, on behalf of, or through the contracting entity on a freelance or per-gig basis, or virtual platform that enables third parties, including independent contractors, to transact with one another for services, or through which independent contractors can market, promote, or advertise their services to third parties, to maintain a written policy against the discrimination of an independent contractor on the basis of genetic information and other factors. Summary based on version of bill as amended on 5/6/2020 when all language from prior introduced version of bill was stricken. Re-referred to Committee on RLS on 5/11/2020. Bill Status: Pending

  • state bill
  • bill
  • California
  • Discrimination
  • nondiscrimination
  • genetic information
  • bill status pending
  • employment nondiscrimination

Establishes the Genetic Information Privacy Act, which would prohibit a direct-to-consumer genetic testing services company from disclosing genetic information to a third party without prior written consent. Set for hearing June 9, 2020. Bill Status: Pending

  • state bill
  • bill
  • California
  • genetic information privacy act
  • Privacy
  • genetic information
  • genetic testing
  • genetic testing services
  • written consent
  • Consent

Requires a genealogy company, defined as a person that is not subject to HIPAA and obtains the DNA of a person through submission of a saliva sample or other methods, to display a notice in all advertising, it’s privacy policies, at the point of sale of the product, and on product packaging. The notice must contain information about the company's privacy policy. 2/27/2020 Referred to Committee on Privacy and Consumer Protection. Bill Status: Pending

  • state bill
  • bill
  • California
  • genealogy
  • HIPAA
  • DNA
  • saliva sample
  • privacy policy
  • Privacy
  • bill status pending

Prohibits the sale of a gene therapy kit unless the seller includes a notice on the seller’s internet website to the consumer prior to the point of sale and on a label on the package stating that the kit is not for self-administration

  • state statute
  • statute
  • gene therapy
  • gene therapy kit
  • California

This statute was amended as part of 2011 CA SB 559, referred to as CalGINA, by adding genetic information to the list of characteristics addressed in the Unruh Civil Rights Act. All people in California are considered free and equal, and no matter what their sex, race, color, religion, ancestry, national origin, disability, medical condition, genetic information, marital status, sexual orientation, citizenship, primary language, or immigration status are entitled to the full and equal accommodations, advantages, facilities, privileges, or services in all business establishments of every kind whatsoever.

  • state statute
  • statute
  • Unruh Civil Rights Act
  • California
  • genetic information

A person who negligently or willfully discloses genetic test results in an individual's medical records who is applying for or enrolled in a health care service plan, except with written authorization in the format specified, is subject to fines as set forth in the statutes

  • state statute
  • statute
  • genetic test
  • genetic test results
  • California
  • written authorization
  • health insurance nondiscrimination
  • Privacy

A person who underwrites or sells an annuity contract or contracts insuring, guaranteeing, or indemnifying against loss, harm, damage, illness, disability, or death, and any affiliate of that person or entity, shall not disclose individually identifiable information concerning the medical or genetic history of a customer for use with regard to granting credit.

  • state statute
  • statute
  • California
  • genetic history
  • medical history
  • Privacy

These statute sections contain provisions from 2011 CA SB 559, referred to as CalGINA. The opportunity to seek, obtain, and hold employment without discrimination because of genetic information, is recognized as a civil right. It is an unlawful employment practice, unless based on a bona fide occupational qualification, to subject any employee, applicant or other person to a test for the presence of a genetic characteristic. In addition, a person in the State of California may not, on the basis of genetic information, be unlawfully denied full and equal access to the benefits of, or be unlawfully subjected to discrimination under, any program or activity that is conducted, operated, or administered by the state or by any state agency, is funded directly by the state, or receives any financial assistance from the state.

  • state statute
  • statute
  • California
  • Discrimination
  • genetic information
  • civil right
  • unlawful genetic test
  • equal access
  • unlawful employment practice
  • genetic discrimination