This PDF download created by the Stanford University Office of Research Data Governance and Privacy outlines the core elements of the policy, a Data Management Plan, allowable costs, etc.
This collection of resources, which includes a recorded meeting, pre-award administrator guidance, brief descriptions of the NIH 2023 DMS policy, and compliance guidance, was compiled by the Research Management Group of Stanford University School of Medicine.
This NIH website lists and provides full-text links to all notices related to data sharing, such as, for example, the final NIH 2023 DMS policy, a notice pertaining to management and sharing of American Indian/ Alaska Native participant data, allowable data management and sharing costs, etc.
This slide deck, which covers the informed consent process, harmonization of the 2023 DMS policy with the NIH Genomic Data Sharing Policy, sharing of American Indian/ Alaska Native participant data, and other topics, was presented in Part 2 of the Conversations with NIH Webinar Series.
This NIH webinar provides guidance on privacy protections for human subjects and considers the interaction of the 2023 DMS policy with the NIH Genomic Data Sharing Policy
This NIH website provides answers to frequently asked questions about the 2023 DMS policy such as those about sharing qualitative data, how noncompliance will be handled, protection of research participants, and other topics.
This slide deck, which defines scientific data, lists allowable justifications for limiting data sharing, reviews elements of a DMS Plan, and covers other topics, was presented in Part 1 of the Conversations with NIH Webinar Series.
This NIH webinar describes the applicability of the 2023 DMS policy, discusses data sharing considerations, and describes how to prepare a Data Management and Sharing Plan.
Narrative American Indian and Alaska Native concerns about genomic research have been well-documented and continue to constitute significant obstacles to participation in genomic research. Our center seeks to make progress on these issues through community-led ELSI research and a commitment to training the next generation of leaders in the field, from both the academy and the community.