Presenters: Kara Ayers, PhD & Joel Michael Reynolds, PhD
Co-Moderators: Rob O'Malley, PhD & Marnie Gelbart, PhD
Date: March 8 2023, 3-4 pm PT / 6-7 pm ET
PROJECT NARRATIVE The purpose of this R25 Diversity Action Plan grant proposal is to create a program that will equip students with disabilities with mentoring, research, and curricular resources that facilitate their advancement towards becoming members of the ELSI community of scholars.
The ability to offer genetic information to inform reproductive decisions, for example through reproductive genetic carrier screening, expanded prenatal testing, or preimplantation embryo screening, is increasingly prevalent. A defining feature of such technologies is that they offer information on many genetic conditions in the one test. Common rationales for expanding the offer of such information include that the results can inform people’s decisions regarding selective reproduction or prepare them to parent a child with a genetic condition.
The National Center on Disability and Journalism at Arizona State University’s Walter Cronkite School of Journalism and Mass Communication provides a style guide for journalists and other communicators writing about disability. The guide was last updated in the summer of 2021.
PROJECT NARRATIVE Human genome editing technologies are evolving rapidly and with this evolution brings questions regarding governance and the ethical implications involved in applying these technologies. The He Jiankui controversy is the primary example of the potential exploitation of HGE and the importance of self-governance. This project will be the first case-study to evaluate self-governance in the realm of human genome editing technologies, the findings of which will be validated through a survey of HGE scientists.