This interview guide seeks to understand genetic health professionals' experiences with obtaining informed consent for diagnostic genomic sequencing from patients.
Obtaining informed consent (IC) for genetic/genomic research is complicated because most of the ethical issues associated with genetic research are considerations to be disclosed by researchers and weighed by prospective participants during the consent process. These include complicated questions associated with return of results, management of incidental findings (results beyond the aims of the study that are of potential significance to individual participants), and responsibility for reinterpretation of findings.