Return of Results | ELSIhub

Return of Results

CSER Phase 2 - Feelings about Genomic Testing Results (FACToR) – Parent

Read more about CSER Phase 2 - Feelings about Genomic Testing Results (FACToR) – Parent

This post-return of child genetic test results survey for parents assesses the psychosocial impact of receiving genomic findings by measuring how much participants had specific feelings such as anxiousness, nervousness, uncertainty, etc, in the past week.

Clinician-stakeholders' perspectives on using patient portals to return Lynch Syndrome screening results

Read more about Clinician-stakeholders' perspectives on using patient portals to return Lynch Syndrome screening results

Attitudes toward return of genetic research results to relatives, including after death: Comparison of cancer probands, blood relatives, and spouse/partners.

Read more about Attitudes toward return of genetic research results to relatives, including after death: Comparison of cancer probands, blood relatives, and spouse/partners.

Should researchers offer results to family members of cancer biobank participants? A mixed-methods study of proband and family preferences

Read more about Should researchers offer results to family members of cancer biobank participants? A mixed-methods study of proband and family preferences

Discordance in selected designee for return of genomic findings in the event of participant death and estate executor

Read more about Discordance in selected designee for return of genomic findings in the event of participant death and estate executor

Use of metaphors about exome and whole genome sequencing

Read more about Use of metaphors about exome and whole genome sequencing

Return of research results from pharmacogenomic versus disease susceptibility studies: What's drugs got to do with it?

Read more about Return of research results from pharmacogenomic versus disease susceptibility studies: What's drugs got to do with it?

Developing a process for returning medically actionable genomic variants to Latino patients in a federally-qualified health center

Read more about Developing a process for returning medically actionable genomic variants to Latino patients in a federally-qualified health center

Ethical considerations related to return of results from genomic medicine projects: The eMERGE network (phase III) experience

Read more about Ethical considerations related to return of results from genomic medicine projects: The eMERGE network (phase III) experience

Neutral, negative, or negligible? Changes in patient perceptions of disease risk following receipt of a negative genomic screening result

Read more about Neutral, negative, or negligible? Changes in patient perceptions of disease risk following receipt of a negative genomic screening result