Healthcare institutions are implementing artificial intelligence (AI) at a rapid pace. The hope is that AI will improve the quality of care and reduce costs in the long run. However, the deployment of AI in healthcare settings also presents new ethical and legal challenges. For example, AI can reproduce health disparities and pose a risk to patients if human factors, like implicit or explicit bias, are present in the training data set or it lacks representation from population subgroups. AI also raises challenges for regulators like the U.S. Food and Drug Administration (FDA).
About this listing
ELSI in Review is a listing of recently published, systematic reviews of the literature on key ELSI topics curated by CERA staff. Our March 2022 set explores rare genetic diseases, digital phenotyping, results disclosure, and more. If you would like your ELSI-relevant review featured in this communication, please contact us at [email protected].
Lee Rainee, Janna Anderson, and Emily A. Vogels
The overall goal of this project is to understand how to encourage and enable people who are developing artificial intelligence for personalized health care to be aware of values in their daily practice. We will examine actual practices and contexts in which design decisions are made for precision medicine applications, and use this information to design group-based workshop exercises to increase awareness of values.
Project Narrative This study would be the first to develop an initial bioethics framework to meet a critical gap in biomedical data modeling activities, where the downstream consequences of developing data models without careful and comprehensive review of ethical issues can be severe?not least because poorly developed data models have the potential to impact adversely the health of individuals, groups, and communities.
One of the most important questions raised by the ongoing achievements of the Human Genome Project is how this new biological knowledge - and the powers it confers - will affect our identity and selfunderstanding as human beings. This book project focuses on one key aspect of this complex issue: exploring the extent to which human identity can be reconciled with deliberate design or partial redesign.