In 1987 the Education Division of the Foundation for Blood Research developed, field tested, and distributed a human genetics curriculum unit for high school biology classes. The unit, titled 'Chances' Choices', is a free-standing interactive unit currently being used on an ongoing basis by at least 280 biology teachers and 15,000 students (annually) throughout the country. This project, in response to rapid advances in the field of human genetics, will revise, update and add to 'Chances' Choices'.
The goal of the Community Genetics and Ethics Project (CGEP) is to enhance community-based participation in consideration of the ethical, legal and social implications (ELSI) of the Human Genome Project and the 'new genetics.' The aims are: to inform a large number of individuals from a broad array of backgrounds about scientific aspects of the new genetics; to raise awareness within its region of how the new genetics and its applications may affect people's lives; to foster interactive community dialogue about ELSI issues; to encourage widespread participation in societal de
This project will continue development of a "Digital Archive on the American Eugenics Movement." During the initial term of the grant, 1,230 images were collected from three major archives and incorporated into a WWW database; image collection trips to several additional American and European archives will increase the number of images to 2,500. The aim of the archive, without leading the viewer to any 'correct' interpretation of the materials, is to present images with adequate narrative background.
This project proposes to develop a searchable archive of images illustrating the American Eugenics Movement for use by students, educators, and others concerned with the ethical, legal, and social implications (ELSI) of human genome research. The Archive will be based primarily on the corpus of rare materials remaining from the Eugenics Record Office at Cold Spring Harbor, which was the epicenter of American eugenics from 1910-40.
This 3 year project intends to modify existing genetics education curricula to create culturally competent education interventions (i.e., independent modules and a 20-hour comprehensive intervention) which will be targeted to the Native American college and university students, and to educators who teach Native Americans.
Although scholars have offered valuable policy recommendations, lawmakers lack a source of comprehensive, clear, and unbiased research concerning the ethical, technical, and legal issues that influence genetics legislation. This project is intended to provide legislators with objective and comprehensive information from a nonpartisan source so they can draft genetics-related legislation that accurately conveys the legislative intent; is clearly understood by lay people, scientists, and industry; and avoids unintended adverse effects.
This study will analyze the process of publicizing new genetic discoveries, and the impact of medical reports on consumers and providers.
The objective of this proposed historical and analytical study is to identify the major ethical concerns of Evangelical ('Born Again') Protestant Christians in the United States relative to genetic research and the Human Genome Project during the time period 1956 to the present.
The goal of this project is to collect cell samples from 40 trios of Mexican-American background for NHGRIs HapMap project, with cells being deposited at the Coriell Institute for Medical Research. This will be done after extensive community consultation and engagement. This effort builds on our recent experience in developing community consultation and sample collection in the same population for the NIGMS Human Genetic Cell Repository at the Coriell Institute.
Hispanics are the most rapidly growing ethnic group in the U.S. There are 35 million Hispanics in the U.S., including 20 million Mexican- Americans. This represents 12.5% and 7.3% of the total U.S. population, respectively (Census 2000). The long-term objective of this proposal is to develop future educational programs in genetics for U.S. Hispanics, particularly those of Mexican descent. In order to prepare for that long-term goal, two specific aims will be addressed in this application: (l) To survey the educational needs of Hispanics/Mexican-Americans in the area of genetics.