This survey was administered to pediatricians' during pediatric grand rounds to assess understanding of children's health rights. The data dictionary for this study outlines the structure, content, and variable definitions for the dataset.
University of Utah Center of Excellence in ELSI research (UCEER). Grant number(s): RM1HG009037
This study evaluated public opinion about the policies and practices relevant to the retention and use of residual bloodspots for biomedical research. The data dictionary outlines the structure, content, and variable definitions for the study dataset.
University of Utah Center of Excellence in ELSI research (UCEER). Grant number(s): RM1HG009037
This study investigated the efficacy and impact of prenatal education about newborn screening and use of residual dried blood spots (DBS) in research. The data dictionary outlines the structure, content, and variable definitions for the study dataset.
University of Utah Center of Excellence in ELSI research (UCEER). Grant number(s): RM1HG009037
The aim of this study was to develop a gaming prototype for decision making about pre-implantation genetic screening (PGS) with in vitro fertilization. The data dictionary for this study outlines the structure, content, and variable definitions for the dataset.
University of Utah Center of Excellence in ELSI research (UCEER). Grant number(s): RM1HG009037
REDCap data dictionary for the project "Carrier Screening Decision-making: An Experimental Study of Media Influences on Conversational Development and Outcomes." The data dictionary outlines the structure, content, and variable definitions for the study dataset.
University of Utah Center of Excellence in ELSI research (UCEER). Grant number(s): RM1HG009037
Case and colleagues developed an educational intervention (CRiTICS) for providers' communication of a positive prenatal genetic screening result. The data dictionary for this study outlines the structure, content, and variable definitions for the dataset.
University of Utah Center of Excellence in ELSI research (UCEER). Grant number(s): RM1HG009037
The aim of this project is to gain understanding of the implications of alternate concepts of genetic causation for theoretical work in behavior genetics and for interventions and therapies arising from behavior genetics research. The data dictionary for this study outlines the structure, content, and variable definitions for the dataset.
University of Utah Center of Excellence in ELSI research (UCEER). Grant number(s): RM1HG009037