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Grant Abstract
ELSI Biennial Congress
PROJECT NARRATIVE The goal of the biennial ELSI Congress is to provide a dedicated, regularly scheduled meeting for researchers focused on the ethical, legal and social implications of genetic and…- Address
- Affect
- American
- base
- Bioethics
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Grant Abstract
Demographic Patterns of Eugenic Sterilization in Three U.S. States: Mixed Methods Investigation of Reproductive Control of the 'Unfit'
PROJECT NARRATIVE We will undertake epidemiological, historical and mixed-methods analysis of nearly 30,000 eugenic sterilization requests processed by three U.S. states: California, North Carolina,…- Age
- Archives
- Attitude
- base
- Belief
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Grant Abstract
Ensuring Patients' Informed Access to Noninvasive Prenatal Testing
PROJECT NARRATIVE The goal of this study is to study the effect of an evidence-based communication tool to support patients? decision-making about noninvasive prenatal genetic testing, by focusing on…- Aneuploidy
- Attitude
- bench to bedside
- Clinical
- clinical practice
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Video
Closing Remarks
ELSI Virtual Forum - Closing Remarks Sandra Soo-Jin Lee and Mildred Cho- Ethical AI
- Data Analyses
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Video
Studying America’s Eugenics Era through an ELSI Lens: Data, Context, and Relevance
We present innovative interdisciplinary research on the history of eugenic sterilization in the 20th century US, with the objective of showcasing new approaches in methodology and dissemination, and… -
Video
Integrating ELSI and Genomics: Past, Present and Future (Keynote)
In 1990, the first Program Announcement for the ELSI Program solicited research proposals across nine domains in the intersection between human genetics and society. The idea was to sponsor research… -
Video
Polygenic Risk Scores & Behavioral Traits: Interrogating the Science & Ethics
The development and aggregation of huge datasets of genomic information, often including hundreds of thousands of participants, has enabled large-scale genome-wide association studies (GWAS) of a… -
Video
New Models for Ethical AI in Precision Medicine: Empirical and Normative ELSI Inquiry
The convergence of genomics, information sciences and Electronic Health Records is a main driver of precision medicine (PM). A common feature of definitions of PM is the use of big data for…