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Data stewardship in FTLD research: Investigator and research participant views
Alzheimer's & Dementia -
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Publication
Translational research and health equity: Gene therapies for sickle cell disease as a case study
Ethics & Human Research -
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Ethical and social implications of public-private partnerships in the context of genomic/big health data collection
European Journal of Human Genetics -
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Views of genetic testing for autism among autism self-advocates: A qualitative study
AJOB Empirical Bioethics -
News
What is the Genomics and Society Working Group at NHGRI?
The Genomics and Society Working Group (GSWG) is the oldest of four working groups established by National Advisory Council for Human Genome Research (NACHGR) (also known as “the council”) to provide…