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Grant Abstract
Building the Medical Information Commons: Participant Engagement and Policy
Many national and international public and private initiatives are forming to collect and share data on a large scale for research and clinical use. Collectively, these efforts may lead to the…- Affect
- Clinical
- clinical application
- Data
- data sharing
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Grant Abstract
Use of Genetic Information by Life, Long-term Care, and Disability Insurers: Exploring International Lessons, the Domestic Legal
This project employs multiple methods and a transdisciplinary approach to explore policy options for US federal and state governments seeking to address how life, long-term care, and disability…- Advocacy
- Affect
- Area
- Australia
- Case Study
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Grant Abstract
iCONCUR: informed CONsent for Clinical data and biosample Use for Research
Being transparent about the use of data collected during clinical care is important to establish trust relationships between patients and researchers. We propose to develop a system to elicit patient…- Ambulatory Care Facilities
- Back
- base
- Caring
- Case Report Form
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Grant Abstract
Developing and Evaluating Patient Centered Tools for Clinical Classification of Variants of Uncertain Significance
Targeted gene sequencing using large panels has become an increasingly important strategy for evaluating disease risk for many inherited diseases. Expanded gene panels are more sensitive than single…- Arrhythmia
- base
- Benign
- Cardiomyopathies
- Characteristics
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Grant Abstract
Genomics and Native Communities: Perspectives, Ethics, and Engagement
Candidate Dr. Nanibaa' Garrison is an Assistant Professor at Vanderbilt University on the tenure-track in the Center for Biomedical Ethics and Society with a primary appointment in the…- American Indian or Alaska Native
- Behavioral and Social Science
- Clinical Research
- Genetics
- Health Disparities
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Grant Abstract
Developing a Genomics Literacy Measure
Genomic literacy plays a critical role in informed decision-making for genomic testing, in the implementation of the test and the accurate interpretation of the results, and in our policy making…- American
- Awareness
- Biological Sciences
- Calibration
- Clinical Research
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Grant Abstract
Protecting the pRivacy Of Genomes in REsearch StudieS (PROGRESS)
With the dramatic reduction in the cost of whole genome sequencing (WGS), genomic data are becoming increasingly available and have the potential to advance public health and promote personalized…- Algorithmic Analysis
- Algorithmic Software
- Architecture
- Award
- Biomedical informatics
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Grant Abstract
Center on American Indian and Alaska Native Genomic Research
American Indian and Alaska Native concerns about genomic research have, in a very real sense, been foundational in ethical, legal, and social implications scholarship. Sadly, many of these issues…- Alaska
- Alaska Native
- American Indians
- Arizona
- Awareness
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Grant Abstract
Ethical, Legal and Social Issues for Precision Medicine and Infectious Disease
Precision medicine is an emerging approach for disease treatment and prevention that takes into account individual variability in genes, environment, and lifestyle for each person. The Precision…- Attention
- Bioethics
- burden of illness
- career development
- Chronic Disease
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Grant Abstract
Genetic Privacy and Identity in Community Settings - GetPreCiSe
Concerns about privacy and personal identity impede use of data about genomic variation, phenotypes, demographics, and exposures from large numbers of people to uncover the contributions of such…- Attitude
- Automobile Driving
- base
- Belief
- Benefits and Risks