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reproductive technologies
community engagement

11 - 20 of 670 Topics

  • Research Tool

    Perceived Caregiving Interactions and Behaviors: Malfeasance, Nonfeasance, and Uplift Scales

    The Perceived Caregiving Interactions and Behaviors: Malfeasance, Nonfeasance, Uplift Scales are used to examine whether levels of nonfeasance, malfeasance, and uplift are associated with the…

  • Scholar

    Sarah Knerr

    • implementation science
    • Health Services Research
    • health care disparity
    • hereditary cancer
    • cancer prevention

  • Scholar

    Benjamin S Wilfond

    • Research Ethics
    • Trisomy
    • Disability ethics
    • Cystic Fibrosis
    • Informed Consent

  • Scholar

    Kate Fultz Hollis

    • Clinical Research
    • Clinical research ethics
    • clinician education
    • Biomedical informatics

  • Collection

    Ethical, Legal, and Social Implications of Generative AI (GenAI) in Healthcare

    The co-evolution of computational processing power and neural network models has made revolutionary developments in generative artificial intelligence (GenAI) possible. One type of GenAI, large…
    • ELSI
    • generative AI
    • large language models
    • bioethics
    • data privacy

  • Research Tool

    The Parental Personal Utility Scale (Parent PrU)

    The Personal Utility Scale (PrU) asks participants to rate how useful they find nineteen outcomes of genome sequencing on a scale ranging from 1 (not at all useful) to 7 (extremely useful). This…

  • Scholar

    Callie H. Burt

    • Behavioral and Social Science
    • Health Disparities
    • Sociogenomics
    • social determinants of health
    • Metascience

  • Collection

    Patient Perspectives on Uncertainty in Genomic Medicine

    All medical information is subject to uncertainty, but the practice of medical genetics is characterized by unique magnitudes and forms of uncertainty. In fact, for many patients, a “positive”…
    • variant of uncertain significance
    • incidental finding
    • patient experience
    • clinical decision-making

  • Collection

    Establishing Gender-Affirming Genetic Counseling Services

    Transgender (trans) describes an individual whose gender identity differs from the sex they were assigned at birth. In the U.S., approximately 2.6 million people (~1% of the population) identify as…
    • TGDI
    • gender affirming care
    • intersex
    • transgender
    • gender-diverse

  • Research Tool

    Race Attributes in Clinical Evaluation (RACE) Scale

    Bonham and colleagues developed the Racial Attributes in Clinical Evaluation (RACE) scale to assess the degree to which health professionals employ race in their clinical decision making. The scale…