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61 - 70 of 431 Topics
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Scholar
R. Alta Charo
- Bioethics Consultants
- gene/genome editing
- Stem Cell Research
- Assisted Reproductive Technology
- animal genetic modification
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Scholar
Skye A. Miner
- reproductive genetics
- Research Ethics
- Return of results & incidental/secondary findings
- Qualitative Methods
- Gender
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Scholar
Jennifer R Malinowski
- Genetic Testing
- health disparities
- access to healthcare
- patient engagement
- clinical practice guidelines
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Scholar
Wendy Diller
- precision medicine
- Medical Devices
- clinical diagnostics
- Cancer and clinical implementation of genomics
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Collection
Paying for Cures: The Ethics and Economics of Gene Therapies for Rare Diseases
Rare diseases, most of which have a genetic basis, collectively affect an estimated 300 million individuals worldwide and are associated with significant morbidity and mortality. Although less than…- gene therapy
- sickle cell disease
- health economics
- nusinersen
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Scholar
Michelle Nichols
- ELSI
- Global Health Research
- Mixed methods
- Community Engagement
- chronic disease management
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Scholar
Zubin Master
- Bioethics
- Adult Stem Cells
- behavior change
- Behavioral Research
- responsible conduct of research
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Scholar
G. Owen Schaefer
- Research Ethics
- Bioethics
- ELSI Genomics
- Ethics of precision medicine
- human enhancement
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Scholar
Katherine McDonald
- Developmental Disabilities
- Disability ethics
- community based participatory research
- IRB (Institutional Review Board)
- IRBs
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Scholar
Andrew A. Dwyer
- Genomic nursing
- Rare Diseases
- Decision making
- Reproductive endocrinology
- Person-centered care