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Research Tool
ELSI Research Methods Questionnaire
Cho and colleagues created this questionnaire to understand the research methodologies currently being used in the study of the ethical, legal, and social implications (ELSI) of genetics and genomics. -
Collection
How Do We Diversify Human Genomics Research?
The lack of diversity in human genomics research and reference datasets is a known problem, with real-life consequences, but the path forward remains elusive. Solutions to the problem of sampling…- genetic diversity
- Admixture
- anti-racism
- FAIR data principles
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Collection
Genomics <em>of</em> Education <em>in</em> Education: ELSI Concerns about Genomic Prediction in Educational Settings
Polygenic scores (PGS) for educational traits and outcomes (e.g., math ability, reading ability, and educational attainment) are currently available to the public via direct-to-consumer genetic…- Polygenic scores
- precision education
- learning disabilities
- Pygmalion effect
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In the Media
New DNA Analysis Supports an Unrecognized Tribe’s Ancient Roots in California
The New York Times |Sabrina Imbler- Genetics and Human Ancestry
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In the Media
They Created a Drug for Susannah. What About Millions of Other Patients?
The New York Times |Erika Check Hayden- rare genetic disease
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In the Media
The Crispr Baby Scientist Is Back. Here’s What He’s Doing Next
WIRED |Emily Mullin- CRISPR/Cas technology
- human gene therapy
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In the Media
The Era of One-Shot, Multimillion-Dollar Genetic Cures Is Here
Wired |Emily Mullin- genetic therapy
- cost of gene therapies
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Collection
Human Gene Editing and the Ethics of Enhancement
Over the past decade, a new generation of precise and efficient gene editing techniques has brought new urgency and attention to the discussion of the ethics of human enhancement. In 2015, gene…- Genetic Enhancement
- human genome editing governance
- Eugenics
- Health Equity
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In the Media
Gene Treatment for Rare Epilepsy Causes Brain Side Effect in 2 Children
The New York Times |Erika Check Hayden- prenatal gene editing
- epilepsy gene treatment
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In the Media
The Disease Took Zara, Then Sara. Could Ayla Be Saved?
The New York Times |Gina Kolata- rare genetic disease
- pre-natal genetic treatment