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Additional Resource
Consumer Protections for Genomics & Precision Health Information Sheet for Arizona
This educational resource offers a summary of some United States (federal) laws and some specific state laws that offer a variety of legal protections related to genetic/omic and mobile/digital…- Jennifer K. Wagner
- NHGRI
- GINA
- HIPAA
- genetic privacy
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Collection
The Evolution of Race and Population Identifiers in Scientific Thought and Practice
The fields of genetics and genomics are at a historically significant crossroads. After more than a century of criticism concerning the use of racial categories in human biological research (by a…- scientific racism
- population identifiers
- NASEM
- colonialism
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Collection
Dataveillance and Human Rights
Nearly 75 years ago, countries agreed to an International Bill of Human Rights, that included, among other fundamental rights, a right to privacy, a right to science, and a right to health. Cohesive…- data privacy
- data justice
- public health surveillance
- HIPAA
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Funding Opportunity
Investigator-Initiated Research in Genomics and Health Equity (R21 Clinical Trial Optional)
- Health Equity
- Genomics research
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Funding Opportunity
Investigator-Initiated Research in Genomics and Health Equity (R01 Clinical Trial Optional)
- Health Equity
- Genomics research
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Additional Resource
Qualitative Data Sharing (QDS) Toolkit
The QDS project team at Washington University School of Medicine in St. Louis has developed the QDS Toolkit to support researchers in planning for and sharing qualitative data in an ethical manner.…- qualitative data
- data sharing
- 2023 NIH Data Management and Sharing Policy
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Collection
Paying for Cures: The Ethics and Economics of Gene Therapies for Rare Diseases
Rare diseases, most of which have a genetic basis, collectively affect an estimated 300 million individuals worldwide and are associated with significant morbidity and mortality. Although less than…- gene therapy
- sickle cell disease
- health economics
- nusinersen
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Funding Opportunity
NIH Science Education Partnership Award (SEPA) (R25 - Clinical Trial Not Allowed)
- Education activities
- diversity
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Collection
The Disability Rights Critique of Technologies that Eliminate Human Genetic Variation
The development and use of an expanding range of medical technologies that yield genetic information about embryos and fetuses has raised ethical questions about whether and how this increasingly… -
Additional Resource
Accessible PowerPoint Presentations
The Stanford University Office of Digital Accessibility provides a step-by-step guide on how to create accessible PowerPoint presentations.- accessibility
- PowerPoint
- Stanford University