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Research Tool
6 Month Follow-Up Non-Responder Personal Genomics (PGen) Study Survey
Carere and colleagues created the 6 Month Follow-Up Non-Responder Personal Genomics (PGen) Study Survey, a short 5 minute survey sent to study participants who had not responded to the 6 Month Follow… -
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REVEAL Impact of Genetic Testing in Alzheimer’s Disease (IGT-AD) Scale
Chung and colleagues created the REVEAL Impact of Genetic Testing in Alzheimer’s Disease (IGT-AD) Scale to measure psychological impact of genetic susceptibility testing for Alzheimer disease (AD).… -
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Survey, Support for Government Regulation of GMO Foods and Percived Risk of GMO Products
This survey assesses support for government regulation of GMO foods and percived risk of GMO products. -
Research Tool
Newborn Whole Genome Sequencing Scenarios
Goldenberg, Dodson, Davis, & Tarini created two scenarios to assess parents’ interest in whole-genome sequencing (WGS) for newborns. Participants were either given a scenario in which WGS was… -
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Semi-Structured Interview Guide: Storage and Use of Residual Newborn Bloodspots
Botkin and colleagues created this semi-structured interview guide to uncover what prospective parents are interested in knowing about the practice of retaining residual newborn screening bloodspots… -
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Interview Guide: Experiences of Sharing Direct-to-Consumer Genetic Testing Results
This interview guide seeks to understand the experiences of those who publicly shared their direct-to-consumer genetic testing results on the online platform openSNP. -
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The IntegratedEthics Facility Workbook
The IntegratedEthics Facility Workbook (IEFW), created by the National Center for Ethics in Health Care, is an evaluation tool that helps health care facilities improve ethical practices and track… -
Research Tool
The IntegratedEthics Staff Survey™ (IESS)
This survey, created by Pearlman and colleagues, measures the attitudes of staff towards ethical practices in multiple areas of a healthcare organizations. -
Research Tool
Semi-structured Interview Guide: Experiences with Personal Genomic Testing
This semi-structured interview guide explores perceptions and use of personal genomic testing (PGT). -
Research Tool
Interview Guide: Genetic Health Professionals’ Experiences with Informed Consent in Diagnostic Genomic Sequencing
This interview guide seeks to understand genetic health professionals' experiences with obtaining informed consent for diagnostic genomic sequencing from patients.