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Privacy, Security, and Nondiscrimination Best Practices for Direct-to-Consumer (DTC) Genetic Testing Companies
The completion of the Human Genome Project opened new doors for business enterprise. One such activity is direct-to-consumer (DTC) genetic testing, or genetic testing offered on a service-driven…- data privacy
- direct-to-consumer genetic testing
- GINA
- genetic discrimination
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Collection
Genetics Toolkit: Preventing Misuse of Genetic Science
The misuse and distortion of genetic science by white supremacists during the 20th century made genetic essentialism, the belief that genes can accurately predict complex behaviors and traits, a…- genetic essentialism
- Behavioral Genetics
- Scientists’ responsibility
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In the Media
Nobel Prize Awarded to Scientist Who Sequenced Neanderthal Genome
The New York Times |Benjamin Mueller- ancient DNA
- Nobel Prize
- DNA sequencing
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Collection
Biocolonialism and Other “Western”-Centered Bioethical Failures Onto Indigenous Peoples
There are complex, historical reasons why global Indigenous peoples have largely not engaged in genetics and genomics research. For example, if we look to the 1990s and early 2000s, global Indigenous…- Indigenous
- genetic data
- genetic ancestry
- decolonization
- Indigenous data
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In the Media
New Method Improves Speed and Cost of Birth Defect Testing
The New York Times |Gina Kolata- Birth Defect
- Genetics
- Pregnancy
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In the Media
60 New Autism Genes Identified
Columbia University Irving Medical Center |- autism
- Candidate Disease Gene
- Genetics
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In the Media
Your Doppelgänger Is Out There and You Probably Share DNA With Them
The New York Times |Kate Golembiewski- Genomics
- Genetics
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In the Media
The Surrogacy Industry Braces for a Post-Roe World
The New York Times |David Dodge- Pregnancy
- Surrogacy
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In the Media
The new precision stewards? A research agenda for ethical, legal and social aspects of antimicrobial resistance
Science Speaks |Karen M. Meagher- Ethics of precision medicine
- ELSI
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In the Media
The Forgotten Virus: Zika Families and Researchers Struggle for Support
The New York Times |Stephanie Nolen- Zika Virus
- Applied Research