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Privacy, Security, and Nondiscrimination Best Practices for Direct-to-Consumer (DTC) Genetic Testing Companies
The completion of the Human Genome Project opened new doors for business enterprise. One such activity is direct-to-consumer (DTC) genetic testing, or genetic testing offered on a service-driven…- data privacy
- direct-to-consumer genetic testing
- GINA
- genetic discrimination
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Genetics Toolkit: Preventing Misuse of Genetic Science
The misuse and distortion of genetic science by white supremacists during the 20th century made genetic essentialism, the belief that genes can accurately predict complex behaviors and traits, a…- genetic essentialism
- Behavioral Genetics
- Scientists’ responsibility
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Biocolonialism and Other “Western”-Centered Bioethical Failures Onto Indigenous Peoples
There are complex, historical reasons why global Indigenous peoples have largely not engaged in genetics and genomics research. For example, if we look to the 1990s and early 2000s, global Indigenous…- Indigenous
- genetic data
- genetic ancestry
- decolonization
- Indigenous data
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Ethical Issues Related to Research Uses of Residual Dried Bloodspots from Newborn Screening
Newborn screening for metabolic and genetic disease is arguably one of the greatest public health interventions—notwithstanding some ethical challenges and opportunities for improvement—because it…- residual specimen
- Newborn screening
- genetic disease
- public attitudes
- Consent
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Abortion and the Genetic Counselor: The Impact of Restrictive Legislation on Genetic Counseling Practice
The first class of genetic counselors graduated with an M.A. from the Sarah Lawrence College in 1971; less than two years later, the Supreme Court decision in Roe v. Wade legalized abortion in all…- genetic counselor
- genetic counseling
- abortion
- prenatal genetic testing
- legislation