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Research Tool
Survey, Support for Government Regulation of GMO Foods and Percived Risk of GMO Products
This survey assesses support for government regulation of GMO foods and percived risk of GMO products. -
Research Tool
Newborn Whole Genome Sequencing Scenarios
Goldenberg, Dodson, Davis, & Tarini created two scenarios to assess parents’ interest in whole-genome sequencing (WGS) for newborns. Participants were either given a scenario in which WGS was… -
Research Tool
Semi-Structured Interview Guide: Storage and Use of Residual Newborn Bloodspots
Botkin and colleagues created this semi-structured interview guide to uncover what prospective parents are interested in knowing about the practice of retaining residual newborn screening bloodspots… -
Research Tool
Interview Guide: Experiences of Sharing Direct-to-Consumer Genetic Testing Results
This interview guide seeks to understand the experiences of those who publicly shared their direct-to-consumer genetic testing results on the online platform openSNP. -
Research Tool
The IntegratedEthics Facility Workbook
The IntegratedEthics Facility Workbook (IEFW), created by the National Center for Ethics in Health Care, is an evaluation tool that helps health care facilities improve ethical practices and track… -
Research Tool
The IntegratedEthics Staff Survey™ (IESS)
This survey, created by Pearlman and colleagues, measures the attitudes of staff towards ethical practices in multiple areas of a healthcare organizations. -
Research Tool
Semi-structured Interview Guide: Experiences with Personal Genomic Testing
This semi-structured interview guide explores perceptions and use of personal genomic testing (PGT). -
Research Tool
Interview Guide: Genetic Health Professionals’ Experiences with Informed Consent in Diagnostic Genomic Sequencing
This interview guide seeks to understand genetic health professionals' experiences with obtaining informed consent for diagnostic genomic sequencing from patients. -
Collection
Ethical Issues Related to Research Uses of Residual Dried Bloodspots from Newborn Screening
Newborn screening for metabolic and genetic disease is arguably one of the greatest public health interventions—notwithstanding some ethical challenges and opportunities for improvement—because it…- residual specimen
- Newborn screening
- genetic disease
- public attitudes
- Consent
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Collection
Abortion and the Genetic Counselor: The Impact of Restrictive Legislation on Genetic Counseling Practice
The first class of genetic counselors graduated with an M.A. from the Sarah Lawrence College in 1971; less than two years later, the Supreme Court decision in Roe v. Wade legalized abortion in all…- genetic counselor
- genetic counseling
- abortion
- prenatal genetic testing
- legislation