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Publication
A place for genetic uncertainty: Parents valuing an unknown in the meaning of disease
Social Science & Medicine -
Publication
How parents search, interpret, and evaluate genetic information obtained from the internet
Journal of Genetic Counseling -
Publication
Supporting family adaptation to presymptomatic and "untreatable" conditions in an era of expanded newborn screening
Journal of Pediatric Psychology -
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Publication
Negotiating desires and options: How mothers who carry the Fragile X gene experience reproductive decisions
Social Science & Medicine -
Publication
Enacting genetic responsibility: Experiences of mothers who carry the fragile X gene
Sociology of Health & Illness -
Publication
Newborn, carrier, and early childhood screening recommendations for Fragile X
Pediatrics -
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Publication
Flexible positions, managed hopes: The promissory bioeconomy of a whole genome sequencing cancer study
Social Science & Medicine