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Video
ELSIcon2022 Paper: Seeking Diverse Inclusion in Bipolar Research: Lessons from a biobank
ELSIcon2022 • Paper • June 1, 2022 Karen Meagher, Monica Taylor-Desir How should biobanks recruit diverse cohorts from historically marginalized communities? Should they measure diversity via…- Live
- Paper
- Recruiting diverse participants to precision medicine research
- genomics research
- Biobanks
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Video
ELSIcon2022 Panel: Sharing Data: Speedbumps on the Translational Trail
ELSIcon2022 • Panel 10 • June 1, 2022 Kathryn Maxson Jones, Vasiliki Rahimzadeh, Kayte Spector-Bagdady, Robert Cook-Deegan This panel features three talks by women researchers empirically…- Live
- Panel
- Data and data stewardship
- equity and justice in genetics
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Video
ELSIcon2022 Paper: Sharing Qualitative Research Data: Addressing the Ethical and Logistical Challenges
ELSIcon2022 • Paper • June 1, 2022 James DuBois, Jessica Mozersky Qualitative data sharing (QDS) promises several benefits: enabling secondary analyses to extend project findings at low cost…- Live
- Paper
- Reflections on the ELSI field
- Methodology and study design
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Video
ELSIcon2022 Panel: The Limits of Consent and Patterns of Coercion in U.S. Histories of Eugenic Sterilization
ELSIcon2022 • Panel 11 • June 1, 2022 Nicole Novak, Heather Dron, Marie Kaniecki, Levity Smith, Juan Gudino This panel showcases recent research by the Sterilization and Social Justice Lab, a…- Live
- Panel
- Eugenic sterilization in the 20th century
- Race, disability, and gender studies
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Video
ELSIcon2022 Networking Session: Ethical Topics Associated with Population Genomic Screening
ELSIcon2022 • Networking Session • June 1, 2022 Kimberly Foss, Kate Saylor This session was led by a genetic counselor and an ELSI researcher. Scientific advances have made genetic screening in…- Live
- Networking Session
- Population screening and public health genomics
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Video
ELSIcon2022 Networking Session: Late-Breaking Abstracts, June 1, 2022
ELSIcon2022 • Networking Session • Late-breaking Abstracts • June 1, 2022 Donrich Thaldar, Aubrey Mansfield, Nicole Novak, Lida Sarafraz, James Tabery, Bonginkosi Shozi- Live
- Networking Session
- Late-breaking Abstracts
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Video
ELSIcon2022 Late-Breaking: South Africans’ opinions on human heritable genome editing: Promoting equal access as key to the future
ELSIcon2022 • Networking Session • Late-breaking Abstracts • June 1, 2022 Donrich Thaldar, Bonginkosi Shozi A deliberative public engagement study among South Africans on the topic of…- Live
- Networking Session
- Late-breaking Abstracts
- Emerging technologies - public opinion and policy
- equity and justice in genetics
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Video
ELSIcon2022 Late-Breaking: Victims of Eugenic Sterilization in Utah: Demographics and Survivor Estimate
ELSIcon2022 • Networking Session • Late-breaking Abstracts • June 1, 2022 James Tabery, Nicole Novak, Lida Sarafraz, Aubrey Mansfield Eugenicists in America, at the beginning of the…- Live
- Networking Session
- Late-breaking Abstracts
- Eugenic sterilization in the 20th century
- Race, disability, and gender studies
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Video
ELSIcon2022 Trainee Networking Session: Working with NHGRI
ELSIcon2022 • Networking Session • June 1, 2022 Questions answered by NHGRI Program Officers Joy Boyer, Dave Kaufman, Nicole Lockhart, and René Sterling.- Live
- Networking Session
- NHGRI Q&A
- Trainees
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Video
ELSIcon2022 Plenary: Troubled Dreams: Genetics, Race, and the Search for Justice in Sickle Cell Disease
ELSIcon2022 • Plenary Session • June 2, 2022 Welcome and Introduction by Sandra Soo-Jin Lee, PhD. Plenary: "Gene Editing and Gene Therapy: The Case of Sickle Cell " presented by Keith Wailoo,…- Live
- Plenary Session
- Stigma and discrimination
- Gene Editing
- Sickle Cell