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Video
Will it be easier to cure sickle cell disease through gene therapy than prevent the disease through pre-implantation genetic testing for the selection of unaffected embryos?
ELSIcon2022 • Pre-recorded Flash Jeanne O'Brien, MD, MSc - Shady Grove Fertility, Rockville MD Sigal Klipstein, MD - InVia Fertility Specialists Joshua Combs - Eunice Kennedy Shriver National…- gene therapy
- Gene Editing
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Video
Decoloniality and Genetic Ancestry: Situating the "African Genome"
The language and practice of social ancestry and genetics are steeped in history. They increasingly influence discussions about the practice of science and the role of communities, yet the meanings…- decoloniality
- ancestry
- Africa
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Video
Legal Challenges to Newborn Screening Research
The last few years have seen calls for more diverse and representative collections of biological samples for population based translational research. This need has sparked increased interest in using…- Newborn screening
- Consent
- blood spots
- Legal
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Video
ELSIcon2022 Panel: Privacy and utility of genetic testing among families with hereditary cancers living in three countries: The International Cascade Screening experience
ELSIcon2022 • Panel 5 • May 31, 2022 Silvia Barnoy, Efrat Dagan, Sue Kim, Maria Caiata-Zufferey, Maria Katapodi Hereditary breast and ovarian cancer (HBOC) and Lynch syndrome (LS) are monogenic…- Live
- Panel
- Disclosure of genetic risk information to relatives
- equity and justice in genetics
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Video
1. ELSI Research Funding through NIH and NHGRI: An Introduction
Updated on 6/28/2022 | Uploaded on 11/6/2020 This is the first of a series of videos designed to provide guidance on the various steps involved in developing and submitting a grant application to… -
Video
Impact of SCOTUS's Dobbs Decision on Prenatal Genomics Research and Practice
The upcoming Supreme Court’s decision in Dobbs v. Jackson Women’s Health is likely to change the landscape of clinical practice in prenatal genomic medicine. With the prospect of overturning Roe v.…- federal policy
- Reproductive Health
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Video
ELSIcon2022 Plenary: Ableism, Audism, Ethics, and Genetics: A Just and Equitable Deaf Future?
ELSIcon2022 • Plenary Session • June 1, 2022 Welcome and Introduction by Mildred Cho, PhD Teresa Blankmeyer-Burke, PhD: Ableism, Audism, Ethics, and Genetics: A Just and Equitable Deaf Future?…- Live
- Plenary Session
- Stigma and discrimination
- ableism
- audism
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Video
Video (in English) on DNA use at the border to verify family relationship claims
Published December 2021 This English-language video for migrant advocates and migrant families describes the process for DNA testing at the border to verify family relationship claims.- family relationships
- Immigration
- DNA testing
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Video
Video (in English) on DNA collection from migrant detainees for CODIS
Published December 2021 This English-language video for migrant advocates and migrant families describes the process for DNA collection from migrant detainees for CODIS.- DNA testing
- DNA sample
- Immigration
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Video
ELSIconversations: Revisions to Demographic Representations on Clinical Lab Requisition Forms
SESSION 3 - May 20: Revisions to Demographic Representations on Clinical Lab Requisition Forms - Register here Question: If changes to these forms were to be recommended, what…