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Grant Abstract
Enhancing the Biobanking Informed Consent Process to Improve Comprehension
Obtaining valid consent for the collection and storage of biospecimens and data for future, unspecified research use remains a significant challenge. Numerous studies have documented that research…- Back
- biobank
- Collection
- Comprehension
- Consensus
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Grant Abstract
Liability in the delivery of personalized medicine: driver, impediment, or both?
Personalized medicine (PM) has the potential to transform medicine and the health care system over the next decade. An overlooked variable that will play an important role in the implementation of PM…- Attention
- beneficiary
- Biological Markers
- Businesses
- Caring
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Grant Abstract
Risk-Benefit Trade-Offs for Whole Genome Sequencing
New technologies are enabling the arrival of the much awaited affordable genome the ability to sequence an individuals or a tumors entire genome quickly and inexpensively [whole genome sequencing (…- Benefits and Risks
- Clinical
- clinical care
- clinical practice
- Clinical Trials
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Grant Abstract
A Risk Management Framework for Identifiability in Genomics Research
When the Human Genome Project was completed almost ten years ago it cost millions of dollars to sequence an individual's genome. Yet, the evolution of high-throughput sequencing and…- Academic Medical Centers
- Address
- Adopted
- Agreement
- Back
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Grant Abstract
CSER RoRC Centralized Support Coordinating Center
The Clinical Sequencing Exploratory Research (CSER) and Return of Results Consortium (RoRC) programs are designed to investigate critical questions about the application of genomic sequencing to…- Area
- Bioethics
- Bioinformatics
- Biology
- Caring
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Grant Abstract
Intellectual Property and Access to Noninvasive Prenatal Genetic Testing
The purpose of this study is to provide empirical data on effects of intellectual property (IP) and commercialization on clinical translation of noninvasive prenatal genetic testing (NIPT) and…- Aneuploidy
- base
- Base Sequence
- Bioethics
- Bioethics Consultants
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Grant Abstract
UCEER: Utah Center for Excellence in ELSI Research P20
The University of Utah Center for Excellence in ELSI Research (UCEER) will conduct strategic planning for ELSI research, training and mentoring, and conduct two pilot projects. The focus of the UCEER…- Aneuploidy
- Child
- Childhood
- Communication
- Communities
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Grant Abstract
GUIDE: Genomic Uses in Infectious Diseases and Epidemics
Genomic information offers the opportunity for "personalized prevention" in both clinical practice and public health settings. To date, such efforts have focused primarily on chronic…- Acute
- Address
- Adverse effects
- Attention
- Behavioral
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Grant Abstract
Center for Transdisciplinary ELSI Research in Translational Genomics
Harvesting the benefits of genomics requires a new kind of transdisciplinary cooperation. Over the next three years, we will create the Center for Transdisciplinary ELSI Research in Translational…- Adult
- Advisory Committees
- Affect
- Aging
- base
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Grant Abstract
Integrating Technology and Context into Research Ethics Education ACME
The goal of this initiative is to develop research ethics leaders in Southeast Asia to meet the emerging research and health system evaluation demands of societies undergoing rapid transition.…- Advisory Committees
- Antismoking
- Asia
- Asians
- Award