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News
The Sulston Project: Making the Knowledge Commons for Interpreting Inherited Cancer Risk More Effective
The Sulston Project is a joint research effort at Arizona State University and Baylor College of Medicine named after John Sulston, the champion of open science who, with Bob Waterston, crafted the…- Genetic Data Sharing and Management
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News
Corporate wellness programs, a threat to privacy?
Genetic testing is increasingly offered as a benefit in employer-sponsored health and wellness programs. Despite rapidly growing popularity of wellness programs, there is little evidence to support…- Genetic Testing
- Wellness programs
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News
Albert R. Jonsen, PhD (1931-2020) Foundational Scholar of Bioethics
Albert R. Jonsen, PhD (1931-2020), a foundational figure and scholar in bioethics, died at his home in San Francisco on October 21, 2020. His extraordinary contributions to the field of…- Al Jonsen
- Bioethics History
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News
The Forefront of Genomics: ELSI and NHGRI’s 2030 Strategic Vision
After two years of planning, the NHGRI released its 2030 “Strategic vision for improving human health at The Forefront of Genomics.” published in Nature on October 28, 2020. Acknowledging the…- National Human Genome Research Institute
- NHGRI 2030 Strategic Vision
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In the Media
Autism Research from an Autistic Perspective
The Tech |D. Catalá- autism
- Adult Medical Genetics
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In the Media
Africa’s People Must Be Able to Write Their Own Genomics Agenda
Nature News |Editorial- Global democratic governance
- H3Africa
- Genetic Data Sharing and Management
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In the Media
Study: There Is No Country Where Heritable Human Genome Editing Is Permitted
Forbes |Farah Qaiser- human germline genome editing
- Governance
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In the Media
Crispr Gene Editing Can Cause Unwanted Changes in Human Embryos, Study Finds
The New York Times |Katherine J. Wu- CRISPR
- Embryonic gene editing
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In the Media
Wealthy Funder Pays Reparations for Use of HeLa Cells
Nature News |Alexandra Witze- Henriette Lacks
- HeLa
- Social Justice
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In the Media
UC Berkeley is Disavowing its Eugenic Research Fund after Bioethicist and Other Faculty Call It Out
Los Angeles Times |Teresa Watanabe- Eugenics