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Research Tool
Race Attributes in Clinical Evaluation (RACE) Scale
Bonham and colleagues developed the Racial Attributes in Clinical Evaluation (RACE) scale to assess the degree to which health professionals employ race in their clinical decision making. The scale… -
In the Media
U.K. approves world’s first CRISPR-based medicine, giving green light to therapy for sickle cell, thalassemia
Stat News |Regulators in the U.K. on Thursday approved a CRISPR-based medicine to treat both sickle cell disease and beta thalassemia, making it the world’s first therapy built on the revolutionary gene-editing…- CRISPR
- CRISPR gene therapy
- Sickle Cell
- Thalassemia
- gene therapy
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Video
The Genomics of PTSD Risk: Scientific and Ethical Perspectives
This ELSI Friday Forum took place on November 10, 2023. Post-traumatic stress disorder (PTSD) can develop following a traumatic event such as natural disaster, sexual or physical assault, or war.…- Trauma
- Polygenic risk scores
- Veterans
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Funding Opportunity
Ethical, Legal and Social Implications (ELSI) Small Research Grant (R03 Clinical Trial Optional)
- ELSI
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Funding Opportunity
Ethical, Legal and Social Implications (ELSI) Research (R01 Clinical Trial Optional)
- ELSI
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In the Media
Panel Says That Innovative Sickle Cell Cure Is Safe Enough for Patients
The New York Times |The decision by an advisory committee may lead to Food and Drug Administration approval of the first treatment for humans that uses the CRISPR gene-editing system- CRISPR
- Sickle Cell
- gene therapy
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In the Media
People of African ancestry are poorly represented in genetic studies. This effort will change that
The Los Angeles Times |Scientists are setting out to collect genetic material from 500,000 people of African ancestry to create what they believe will be the world’s largest database of genomic information from the…- Pangenome
- African genomics
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Video
TraineeHub: Finding and Making Sense of NIH Funding Opportunities
"Finding and Making Sense of NIH Funding Opportunities" took place on October 3, 2023. Identifying funding opportunities at NIH that match your career and research goals can be overwhelming.… -
Research Tool
Inteview Guide: Knowledge and Attitudes about Privacy and Secondary Data Use among African-Americans Using Direct-to-Consumer Genetic Testing
Ziegler and colleagues developed this semi-structured, qualitative, interview guide to elicit perspectives from Black/African-American participants on direct-to-consumer genetic testing. Topics…