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Research Tool
The IntegratedEthics Facility Workbook
The IntegratedEthics Facility Workbook (IEFW), created by the National Center for Ethics in Health Care, is an evaluation tool that helps health care facilities improve ethical practices and track… -
Research Tool
The IntegratedEthics Staff Survey™ (IESS)
This survey, created by Pearlman and colleagues, measures the attitudes of staff towards ethical practices in multiple areas of a healthcare organizations. -
Research Tool
Semi-structured Interview Guide: Experiences with Personal Genomic Testing
This semi-structured interview guide explores perceptions and use of personal genomic testing (PGT). -
Research Tool
Interview Guide: Genetic Health Professionals’ Experiences with Informed Consent in Diagnostic Genomic Sequencing
This interview guide seeks to understand genetic health professionals' experiences with obtaining informed consent for diagnostic genomic sequencing from patients. -
In the Media
Edits to a cholesterol gene could stop the biggest killer on earth
MIT Technology Review |Antonio Regalado- Gene Editing
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In the Media
CRISPR, 10 Years On: Learning to Rewrite the Code of Life
The New York Times |Carl Zimmer- CRISPR/Cas technology
- human germline genome editing
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In the Media
Half in UK back genome editing to prevent severe diseases
The Guardian |Ian Sample- human genome editing
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In the Media
A Racist Researcher, Exposed by a Mass Shooting
The New York Times |Monika Pronczuk and Koba Ryckewaert- racism in medicine. medical research, and publishing
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In the Media
How Much Do Your Genes Shape Your Politics?
The New York Times |Thomas B. Edsall- Sociogenomics
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In the Media
The Pandora’s Box of Embryo Testing Is Officially Open
Bloomberg |Carey Goldberg- Preimplantation Embryos
- preimplantation genetic testing