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Research Tool
Genetic Literacy Fast Test (GeneLiFT)
The Genetic Literacy Fast Test (GeneLiFT) is a self-administered genetic literacy test for individuals who intend to undergo genetic screening with return of results. -
Research Tool
Genetic Essentialism Scale for Race (GESR)
The Genetic Essentialism Scale for Race (GESR) measures beliefs about the relationship between genes and race with 15 items. Please see Table 1 of linked article by Yaylacı and colleagues for… -
Research Tool
CSER Information Seeking Measure
The CSER Information Seeking Measure (two versions) is a single-item measure that assesses the sources of information that patients think they will be likely to use to obtain further information… -
Research Tool
CSER Phase 1: Physician Consent Form - Incorporation of Genomic Sequencing into Pediatric Cancer Care Study
This physician consent form was approved by the Institutional Review Board for the Baylor College of Medicine and Affiliated Hospitals for use in the Incorporation of Genomic Sequencing into… -
Research Tool
Making improvements in hospital care survey
The Making Improvements in Hospital Care Survey is a 32-item survey instrument designed to measure patient preferences for consent to non-invasive, quality improvement interventions in the hospital… -
Research Tool
Instrument for assessing mass media reporting of disease-related genetic discoveries
Instrument for assessing mass media reporting of disease-related genetic discoveries is a 38-item tool for evaluating the quality and balance of media stories reporting genetic discoveries related to… -
In the Media
The broken promise that undermines human genome research
Nature News |Kendall Powell- Genetic Data Sharing and Management
- Genetic Databases
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In the Media
The Irrationality of Transhumanists
IAI News |Susan B. Levin, PhD- trans humanism
- Human bioenhancement technologies
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In the Media
Ambiguous genetic test results can be unsettling. Worse, they can lead to needless surgeries
The Washington Post |Christina Bennett- consumer genetic testing
- Variants of Uncertain Significance
- clinical genetics
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In the Media
H3Africa Consortium Primes A Continent For Large-Scale Genomics Research
Bio-IT World |Deborah Borfitz- Big Data
- H3Africa
- genomic research