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News
Genetics and Responsibility: More Complicated Than We’d Thought
Watch the recordings of the symposium here By Erik Parens, PhD and Paul S. Appelbaum, MD In 1991, sociologist Abby Lippman proposed the geneticization thesis, i.e., that “genetic science [would]…- genetics and responsibility
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News
Melanie Myers: A Call for Research on Genetic Counseling Processes and Practices
Dr. Myers discusses this exciting new RFA – and how to use ELSIhub to find and follow up on funding opportunities Melanie Myers, PhD, MS spoke with CERA staff about the new National Human…- Genetic Counseling
- genetic counseling research
- genetic counseling training
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News
Why it is Important to Call Out Racist Language Amongst Our Professional Peers
Recently, on a panel at a conference of a medical professional society, the president of the society used a racist term that is an ethnic slur used to refer to Asians. The speaker did not publicly…- racism
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News
TraineeHub Resources
This digital collection of ELSI-related resources is intended to provide useful information for ELSI trainees and early career scholars. If you would like submit a resource please email…- TraineeHub Resources
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News
A Bigger View: Ingrid Holm on Sharing Research Tools
CERA staff spoke with Ingrid A. Holm, MD, MPH, Professor of Pediatrics, Harvard Medical School, in April about two research instruments she deposited into the Research Tools Database on…- research tools
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Research Tool
CSER Phase 1: Cardiologist Consent Form - The MedSeq™ Pilot Project: Integrating Whole Genome Sequencing into Clinical Medicine
The purpose of the MedSeq Project was to develop a process for a process for integrating information obtained from whole genome sequencing into clinical practice and to explore how physicians and… -
Research Tool
CSER Phase 1: Patient Consent Form - Incorporation of Genomic Sequencing into Pediatric Cancer Care Study
This patient consent form was approved by the Institutional Review Board for the Baylor College of Medicine and Affiliated Hospitals for use in the Incorporation of Genomic Sequencing into Pediatric… -
Research Tool
CSER Phase 1: The Baylor Advancing Sequencing into Childhood Cancer Care (BASIC3) Study Brochure
The study brochure for the BASIC3 Study, funded by the NHGRI, is an easy to read description of the study purpose, eligibility requirements, and study procedures. It also offers a basic explanation… -
Research Tool
CSER Phase 1: Parent Consent Form - Incorporation of Genomic Sequencing into Pediatric Cancer Care Study
This parent consent form was approved by the Institutional Review Board for the Baylor College of Medicine and Affiliated Hospitals for use in the Incorporation of Genomic Sequencing into Pediatric… -
Research Tool
CSER Phase 2 Organizational Readiness to Change Assessment
The CSER Organizational Readiness to Change Assessment measures the readiness of healthcare systems to implement clinical sequencing. It is comprised of 19 items from an existing measure, the ORCA (…