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Research Tool
Genomics ADvISER
Genomics ADvISER is a digital decision aid for use in the delivery of genomic counseling. It is intended as a supplement to genomic counseling with a counselor. Genomics ADvISER guides users through… -
Research Tool
Interview Guide, Moral Views of Gene Drive Technology Experts
This semi-structured interview guide is intended for use with gene drive technology (GDT) experts. It was developed using ethical arguments identified by the authors via literature review. It employs… -
Research Tool
Common survey items, eMERGE participant survey at 6-12 months post disclosure
This survey covers disclosure of genetic test results to family members, follow up care, behavior changes, and other topics. It can be administered using REDCap. -
Research Tool
Common survey items, eMERGE participant survey at 0-1 month post disclosure
This survey covers disclosure of genetic test results to family members, plans for follow up care, plans for behavior changes, demographic information, and other topics. It can be administered using… -
News
From Trainees to Scholars: Three ELSI Career Paths
ELSI scholarship is constantly evolving as new technologies raise new ethical challenges and questions. For younger scholars in the field, this presents ample opportunity to explore original topics…- ELSI research
- ELSI training program
- Careers in ELSI
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News
ELSIhub Collections | Race, Genetics, and Genetics Education
Click here for all ELSIhub Collections Collection Editors Brian M. Donovan, PhD, Research Scientist, BSCS Science Learning Daphne O. Martschenko, PhD, Postdoctoral Research Fellow,…- race and genetics
- genetic education
- Genetics
- Racial essentialism
- genomics literacy
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Research Tool
CSER Phase 1: The Institutional and Professional Impact of Genomic Sequencing in Cancer Care Study Protocol
This document is the study protocol of the Institutional and Professional Impact of Genomic Sequencing in Cancer Care study. Appendices include the following: Email Notification to Oncologists about… -
Research Tool
CSER Phase 1: The use of sequencing to guide the care of cancer patients (CanSeq) study protocol
This document is the Use of Sequencing to Guide the Care of Cancer Patients study protocol. Appendices include the following: Measures for Patient Baseline, Email Notification to Patients to Complete… -
Research Tool
CSER Phase 1: Personalized Oncology Through High-throughput Sequencing:
MI-ONCOSEQ Study Protocol
The Personalized Oncology Through High-throughput Sequencing: MI-ONCOSEQ (Michigan Oncology Sequencing Center) (formerly known as “Personalized Medicine Based on Molecular Profiling of Patients with… -
Research Tool
CSER Phase 1: Personalized Medicine Based on Molecular Profiling of Pediatric and Young Adult Patients with Cancer Study Protocol
The Personalized Medicine Based on Molecular Profiling of Patients with Cancer implements a mechanism for patients who have advanced or refractory cancer to undergo tumor sequencing, sequence…