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Research Tool
CSER Phase 1: Parent Consent Form - Incorporation of Genomic Sequencing into Pediatric Cancer Care Study
This parent consent form was approved by the Institutional Review Board for the Baylor College of Medicine and Affiliated Hospitals for use in the Incorporation of Genomic Sequencing into Pediatric… -
Research Tool
CSER Phase 2 Organizational Readiness to Change Assessment
The CSER Organizational Readiness to Change Assessment measures the readiness of healthcare systems to implement clinical sequencing. It is comprised of 19 items from an existing measure, the ORCA (… -
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Research Tool
Genomics ADvISER
Genomics ADvISER is a digital decision aid for use in the delivery of genomic counseling. It is intended as a supplement to genomic counseling with a counselor. Genomics ADvISER guides users through… -
Research Tool
Interview Guide, Moral Views of Gene Drive Technology Experts
This semi-structured interview guide is intended for use with gene drive technology (GDT) experts. It was developed using ethical arguments identified by the authors via literature review. It employs… -
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Common survey items, eMERGE participant survey at 6-12 months post disclosure
This survey covers disclosure of genetic test results to family members, follow up care, behavior changes, and other topics. It can be administered using REDCap. -
Research Tool
Common survey items, eMERGE participant survey at 0-1 month post disclosure
This survey covers disclosure of genetic test results to family members, plans for follow up care, plans for behavior changes, demographic information, and other topics. It can be administered using… -
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Research Tool
CSER Phase 1: The Institutional and Professional Impact of Genomic Sequencing in Cancer Care Study Protocol
This document is the study protocol of the Institutional and Professional Impact of Genomic Sequencing in Cancer Care study. Appendices include the following: Email Notification to Oncologists about…