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Publication
Newborn screening for developmental disabilities: Reframing presumptive benefit
American Journal of Public Health -
Publication
Allegations of misuse of African DNA in the UK: Will data protection legislation in South Africa be sufficient to prevent a recurrence?
Developing World BioethicsMoodley and Kleinsmidt emphasize the need for explicit discussions around benefit sharing and commercialization in consent models that incorporate broad consent as an option in South Africa. -
Publication
A standalone humanitarian DNA identification database system to increase identification of human remains of foreign nationals
Int J Legal MeBudowle and colleagues invite submission of family reference samples from missing non-US citizens for comparison with profiles from unidentified human remains in the Humanitarian DNA Identification… -
Publication
A place for genetic uncertainty: Parents valuing an unknown in the meaning of disease
Social Science & Medicine -
Publication
How parents search, interpret, and evaluate genetic information obtained from the internet
Journal of Genetic Counseling -
Publication
Supporting family adaptation to presymptomatic and "untreatable" conditions in an era of expanded newborn screening
Journal of Pediatric Psychology -
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Publication
Negotiating desires and options: How mothers who carry the Fragile X gene experience reproductive decisions
Social Science & Medicine -
Publication
Enacting genetic responsibility: Experiences of mothers who carry the fragile X gene
Sociology of Health & Illness