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Video
ELSIcon2022 Paper: Fresh Air for Genetic Data Sharing
ELSIcon2022 • Paper • June 3, 2022 Mary Majumder, Christi Guerrini, Amy McGuire, Jill Robinson, Matthew Blank, Robert Cook Deegan, Juli Bollinger, Janis Gear It is now widely acknowledged…- Live
- Paper
- Data and data stewardship
- equity and justice in genetics
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Video
ELSIcon2022 Flash: Genetic testing for addiction: A qualitative examination of interest, motivations, and concerns among patients with gambling disorder and alcohol use disorder.
ELSIcon2022 • Flash • June 3, 2022 Shawn Sorge, Matthew Lebowitz Rationale: Addictive disorders are increasingly conceptualized as having a genetic basis. Personalized genetic information is…- Live
- Flash
- Uptake of genetic testing
- Genetic testing and screening
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Video
ELSIcon2022 Paper: Neglected ELSI in Biobanking: Addressing Issues of Governance, Stewardship, and Equity
ELSIcon2022 • Paper • June 3, 2022 Roselle Ponsaran, Kyle B. Brothers, Aaron Goldenberg, Jean Cadigan The promotion of precision medicine has led to increased interest in larger collections…- Live
- Paper
- equity and justice in genetics
- Data and data stewardship
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Video
ELSIcon2022: Paper Session 13
ELSIcon2022 • Paper Session 13 • June 3, 2022 Includes discussion material from Kayte Spector-Bagdady, Arti Singh, Roselle Ponsaran, and Mary Majumder.- Live
- Paper
- equity and justice in genetics
- Education and public reception of genetic science
- Biobanking and genomic databases
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Video
ELSIcon2022: Paper Session 14
ELSIcon2022 • Paper Session 14 • June 3, 2022 Includes discussion material from Kiana Amini, Vardit Ravitsky, Gail Henderson, John Conley, and Jennifer James.- Live
- Paper
- Genetic testing and screening
- Gene therapy and gene editing
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Video
ELSIcon2022 Flash: Patients’ expectations of benefits from large-panel genomic tumor testing in rural community oncology practices
ELSIcon2022 • Flash • June 3, 2022 Eric Anderson, Paul Han Large-panel genomic tumor testing (GTT) is a new technology that promises to make cancer treatment more precise. However, GTT also…- Live
- Flash
- Uptake of genetic testing
- Genetic testing and screening
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Video
ELSIcon2022 Paper: Public Engagement in Governance of Human Genome Editing in the Post-He Jiankui Era
ELSIcon2022 • Paper • June 3, 2022 John Conley, Eric Juengst, Rebecca Walker, Jean Cadigan, Gail Henderson When scientists meeting at Asilomar in 1975 wrote guidelines for recombinant DNA…- Live
- Paper
- Gene therapy and gene editing
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Video
ELSIcon2022 Paper: Returning Polygenic Risk Scores to Participants in a Pragmatic Clinical Trial of Breast Cancer Screening: Ethical Dilemmas and Participant (mis)Understanding
ELSIcon2022 • Paper • June 3, 2022 Jennifer James, Leslie Riddle, Mika Caruncho, Barbara Koenig, Galen Joseph Population-based genomic screening is at the forefront of a new approach to…- Live
- Paper
- Screening for polygenic conditions and risk scores
- Genetic testing and screening
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Video
ELSIcon2022 Flash: Socioeconomic Status and Interest in Pursuing Genetic Testing for Hereditary Cancer in a US Based Population
ELSIcon2022 • Flash • June 3, 2022 Presented by: EJ Dusic Deborah J. Bowen, Robin Bennett, Tesia Theoryn, Kevin C. Cain, Elizabeth Swisher, Jeannine Brant, Brian Shirts, Catharine Wang…- Live
- Flash
- Uptake of genetic testing
- Genetic testing and screening
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Video
ELSIcon2022 Panel: The Ethics of Influence and Choice Architecture in Genomics: Where Have We Been and Where Are We Going?
ELSIcon2022 • Panel • June 3, 2022 Benjamin Berkman, Susanna McGrew, Leila Jamal In Western bioethics, patient choice and autonomy have historically carried the most weight in conversations…- Live
- Panel
- Uptake of genetic testing
- Genetic Counseling