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Grant Abstract
Health Care Provider Responses to Receiving Unsolicited Genomic Results
Background: There is great interest in the implementation of genomic medicine, i.e., using genomic information to inform patient care. As a result, patients with medically actionable (preventable and…- barrier to care
- base
- Behavior
- biobank
- cancer therapy
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Grant Abstract
Sequencing and Genotyping in Diverse Populations: Who Wants What Back (and When)?
The North Coast Conference on Precision Medicine is a national annual mid-sized conference series held in Cleveland, Ohio. The conference series aims to serve as a venue for the continuing education…- Academic Medical Centers
- Acceleration
- African American
- Area
- Back
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Grant Abstract
Genetics and genomic research in Uganda: Towards context specific ethics guidelines
The overall goal of this proposed project is to systematically develop culturally appropriate model ethics guidelines for conducting genetics and genomics research (GGR) in Uganda. This goal will be…- Africa
- Africa South of the Sahara
- authority
- Awareness
- Bioethics
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Grant Abstract
Programs for the Training and Advancement of the Next GENeration of Native Researchers in Genetics, Ethics and Society
The lack of American Indian and Alaska Native professionals in genomic sciences today highlights the tremendous need for effective training and research programs to prepare the next generation of…- academic program
- Achievement
- Address
- Affect
- Alaska Native
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Grant Abstract
Intergenerational Monitoring in Clinical Trials of Germline Gene Editing: Ethical, Legal, and Social Issues
Project Summary The breakneck pace of development towards potential uses of germline gene editing (GGE) in medicine raises some very crucial ethical questions. Though much research still needs to be…- biobank
- Bioethical Issues
- Bioethics
- Bioethics Consultants
- Cell Therapy
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Grant Abstract
Unresolved Issues in Newborn Screening: Quantifying the Harms of a False Positive Result
While newborn screening (NBS) programs have saved the lives of thousands of children with inherited disorders, the future success of this vital public health program depends on the ability to…- adverse outcome
- Behavioral
- Bioethics
- Biometry
- Birth Order
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Grant Abstract
Genomics, Biometrics and Identity
As concerns for border security increase, policymakers are turning to genomics as a biometric for tracing individuals entering the country, identifying missing migrants' remains, processing…- Advocate
- Affect
- Attention
- authority
- base
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Grant Abstract
Reporting Adult-Onset Genomic Results to Pediatric Biobank Participants and Parents
The potential benefits and harms of returning genomic results to children and their parents are matters of enduring controversy--especially genomic results for adult-onset conditions that are not…- Adolescent
- Adolescent Development
- Adult
- Affect
- Anxiety
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Grant Abstract
A Community-Based Approach to Overcoming Barriers to Cascade Screening for Long QT Syndrome
While the value of identifying individuals in the population who carry `actionable' variants and screening their relatives (i.e. cascade screening) is widely acknowledged, there are numerous…- actionable mutation
- Address
- Adrenergic beta-Antagonists
- American
- Amish
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Grant Abstract
Appropriation, Adaptation, and Political Mobilization of Genomics Research
This project will analyze how US white nationalists are appropriating, adapting, politically mobilizing and changing themselves in response to contemporary genomics research. White nationalists have…- Admixture
- Advocate
- African
- Agreement
- American