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ELSIcon2022 Flash: Inequality and Health: Sickle Cell Disease and Food Insecurity during the COVID-19 Pandemic
ELSIcon2022 • Flash • May 27, 2022 Faeben Wossenseged, Ashley Buscetta, Nicole Farmer, Vence Bonham The COVID-19 pandemic has exacerbated social inequalities including food insecurity, limiting…- Lived experience of genetic conditions
- health disparities
- Flash
- Pre-Recorded
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Video
ELSIcon2022 Paper: In the Shadows of Virtual Family Trees
ELSIcon2022 • Paper • May 27, 2022 Amy McGuire, André Brock, Katrina Ellis, Lynette Hammond Gerido Technology is changing the ways in which we relate to each other, create knowledge, and share…- Data and data stewardship
- Education and public reception of genetic science
- Paper
- Pre-Recorded
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Video
ELSIcon2022 Paper: How useful is genome sequencing to parents of pediatric cancer patients? Findings from the Texas KidsCanSeq Study
ELSIcon2022 • Paper • May 27, 2022 Janet Malek, Jill Robinson, Hadley Stevens Smith, Amanda Gutierrez, Sarah Classen, Sarah Scollon, D. Will Parsons, Sharon Plon, Amy McGuire The ongoing Texas…- Uptake of genetic testing
- Genetic testing and screening
- Paper
- Pre-Recorded
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ELSIcon2022 Panel: How does Genetics and Racial Disparities influence Stillbirth Risk and Reoccurrence?
ELSIcon2022 • Panel • May 27, 2022 Tsegaselassie Workalemahu, Sarah Heerboth, Naomi, Riches, Erin Rothwell Stillbirths account for most perinatal deaths and almost half of them are attributed to an…- Uptake of genetic testing
- Genetic testing and screening
- Panel
- Pre-Recorded
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ELSIcon2022 Paper: Genetic Options and Constraints: How Genetic Ancestry Tests Change Ethnic Identities
ELSIcon2022 • Paper • May 27, 2022 Şule Yaylacı, Wendy Roth An estimated 15% of all U.S. adults have taken genetic ancestry tests (GATs). Recent studies have found that many test-takers change…- genetic identity
- Paper
- Pre-Recorded
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Video
ELSIcon2022 Flash: Genetic Attribution and Felt Stigma in People with Epilepsy
ELSIcon2022 • Flash • May 27, 2022 Ruth Ottman, John B. Wetmore Among people with epilepsy, felt stigma remains common and significantly impacts quality of life. In our previous study of families…- Stigma and discrimination
- Genetic testing and screening
- Flash
- Pre-Recorded
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ELSIcon2022 Paper: Family Secrets Revealed: Experiences and impacts of participating in direct-to-consumer genetic relative-finder services
ELSIcon2022 • Paper • May 27, 2022 Christi Guerrini, Jill Robinson, Cinnamon Bloss, Whitney Bash Brooks, Stephanie M. Fullerton, Brianne Kirkpatrick, Sandra Soo-Jin Lee, Mary Majumder, Stacey…- Relative finding/matching
- Genetic testing and screening
- Paper
- Pre-Recorded
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ELSIcon2022 Paper: Exploitation in Genetics Research: Vulnerability, Unfairness, and Degradation
ELSIcon2022 • Paper • May 27, 2022 Naomi Scheinerman While the concern of “exploitation” features quite prominently in bioethics, such as in patient payment for participation in genetics research,…- Language and categorization
- Biobanking and genomic databases
- Paper
- Pre-Recorded
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ELSIcon2022 Paper: Examining Embeddedness: A Call for Principles and Best Practices for Integrating ELSI
ELSIcon2022 • Paper • May 27, 2022 Jenny Reardon, Stephanie M. Fullerton, and Sandra Soo-Jin Lee Increasingly, public and private funders have come to recognize the critical significance of…- Reflections on the ELSI field
- equity and justice in genetics
- Paper
- Pre-Recorded
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ELSIcon2022 Paper: Cystic Fibrosis Communities: Shifting Sites of Prognostic Imagination
ELSIcon2022 • Paper • May 27, 2022 Rebecca Mueller Long before COVID-19 made social distancing normal, people with cystic fibrosis already practiced such behaviors. Between the 1980s and the…- Lived experience of genetic conditions
- Race, disability, and gender studies
- Paper
- Pre-Recorded