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21 - 30 of 525 Topics
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In the Media
People of African ancestry are poorly represented in genetic studies. This effort will change that
The Los Angeles Times |Scientists are setting out to collect genetic material from 500,000 people of African ancestry to create what they believe will be the world’s largest database of genomic information from the…- Pangenome
- African genomics
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Video
TraineeHub: Finding and Making Sense of NIH Funding Opportunities
"Finding and Making Sense of NIH Funding Opportunities" took place on October 3, 2023. Identifying funding opportunities at NIH that match your career and research goals can be overwhelming.… -
Video
TraineeHub: Publishing ELSI in Scientific Journals
"Publishing ELSI in Scientific Journals" took place on September 7, 2023. This session was tailored to trainees and early career scholars aspiring to publish ELSI-related work in scientific… -
Video
Fair Access and Equity of Individualized Interventions for Ultrarare Genetic Conditions
This ELSI Friday Forum took place on September 8, 2023. Since application of the first individualized therapy in 2019, development of these bespoke treatments has expanded rapidly. Individualized…- Ultrarare Diseases
- N-of-1
- Individualized Therapies
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In the Media
Family of Henrietta Lacks Settles With Biotech Company That Used Her Cells
The New York Times |Ms. Lacks’s family had accused Thermo Fisher Scientific of profiting from her cells, which have contributed to revolutionary advances in medicine, without seeking their permission.- HeLa
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Video
TraineeHub Grantsmanship Series: The Writing and Uses of Specific Aims
"The Writing and Uses of Specific Aims" took place on July 19, 2023. The Specific Aims section of grant proposals is only one page, but it is one of the hardest to write, with many uses beyond the…- Specific Aims
- Grantsmanship
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Video
Population Descriptors in Genomic Research: Applying the NASEM Recommendations
This ELSI Friday Forum took place on July 14, 2023. History demonstrates that the potential for typological thinking continues to be a hazard of genetic research involving human groups. In 2022 the…- population descriptors
- NASEM
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Video
Publishing in Bioethics Journals - What You Need to Know
Presenters: David Magnus, PhD & Holly Tabor, PhD Moderator: Maya Sabatello, LLB, PhD Date: June 29th, 2023, 12 p.m. ET This session for trainees and early…- Authorship
- Publishing
- Journals
- Bioethics
- Authorship
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Video
Legal and Policy Challenges to Privacy in the Post-Genomic and Post-Dobbs Era
This ELSI Friday Forum took place on June 9, 2023. Rapid growth in genetic understanding presents challenges for expectant parents, now complicated by the Dobbs decision’s removal of federal…- genetic privacy
- Legal
- Policy
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In the Media
The quest for the era of personalised medicine
BBC |The Human Genome Project was supposed to lead to personalised medicine tailored to our DNA. It's finally happening, but it is proving more difficult than anyone could have imagined.- personalized medicine