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Research Tool
Semi-structured Interview Guide: Experiences with Personal Genomic Testing
This semi-structured interview guide explores perceptions and use of personal genomic testing (PGT). -
Research Tool
Interview Guide: Genetic Health Professionals’ Experiences with Informed Consent in Diagnostic Genomic Sequencing
This interview guide seeks to understand genetic health professionals' experiences with obtaining informed consent for diagnostic genomic sequencing from patients. -
Additional Funding Resource
NIH Grants YouTube Tutorials
YouTube video tutorials from the NIH on applying for grant funding. Videos on the grant process, writing, budget building, and application tips. -
Research Tool
Genetics Post-Course Survey (Genotype Data)
Salari and colleagues designed this survey to measure student attitudes and knowledge about genomics and personalized medicine after taking an 8-week course on genomics and personalized medicine.… -
Research Tool
Awareness and Purpose of Genetic Counseling Survey
Maio and colleagues designed this survey to measure awareness and perceptions of the purpose of genetic counseling. See the methods section and table 1 of the linked article for the survey questions… -
Research Tool
Educational Video on Expanded Carrier Screening (ECS) & Autosomal Recessive (AR) Disorder
Conjin and colleagues created this brief educational video on autosomal recessive inheritance, the expanded carrier screening (ECS) test, reproductive options, and a description of MPS III (… -
Research Tool
Educational Text on Expanded Carrier Screening (ECS) & Autosomal Recessive (AR) Disorder
Conjin and colleagues created this brief online written educational summary on autosomal recessive inheritance, the expanded carrier screening (ECS) test, reproductive options, and a description of… -
Research Tool
Genetic Knowledge Test (Carrier Status, Autosomal Recessive Disorders, Expanded Carrier Screening)
Conjin and colleagues created this brief knowledge test to measure the effect of an educational video compared to an educational text. The educational text, video, and questionnaire used in this… -
Research Tool
Expanded Carrier Screening Questionnaire
Conjin and colleagues created this questionnaire to assess genetic knowledge, the perceived severity of MPS III (Sanfilippo disease), perceived risk, and attitudes toward expanded carrier screening (… -
Research Tool
Attitudes Toward Prenatal Genetic Screening and Testing in Twin Pregnancies Survey
Reese and colleagues designed this survey to collect information on attitudes toward prenatal genetic screening and testing, including changes in attitude toward or uptake of testing related to the…