The topics page enables quick access to all resource types on
the platform, organized by relevance to your topic.
Popular Searches
Featured Topics
Featured Topics
111 - 120 of 548 Topics
-
Video
ELSIcon2022 Paper: The Individual Genome as a Commons: Getting Genome Conceptualization and Governance Right
ELSIcon2022 • Paper • May 31, 2022 Shelly Simana Current "genome conceptualization and governance" (GCG) in the U.S. is framed around individual rights and has taken on a libertarian ethos. An…- Live
- Paper
- Data and data stewardship
- identity
-
Video
ELSIcon2022 Paper: Using cost-utility analysis to evaluate the health equity impacts of population genetic screening for BRCA1/BRCA2
ELSIcon2022 • Paper • May 31, 2022 Kate Saylor Predictive genetic screening in unaffected individuals is becoming more accessible, but its relevance for advancing health equity is debated. Many…- Live
- Paper
- Population screening and public health genomics
- Genetic testing and screening
-
Video
ELSIcon2022 Flash: What Led to the Abolition of Iowa’s State Eugenics Program in 1977?
ELSIcon2022 • Flash • May 31, 2022 Bridget Easler, Breanna Rinker, Alexandra Minna Stern, Elyse Thulin, Nicole Novak Iowa’s Board of Eugenics (BoE), which oversaw the sterilization of 1,910…- Live
- Flash
- Eugenic sterilization in the 20th century
- Race, disability, and gender studies
-
Video
ELSIcon2022 Paper: “Big bioethics” research: Is the ELSI community ready?
ELSIcon2022 • Paper • May 31, 2022 Joel Pacyna, Richard Sharp ELSI research has traditionally sought to give patients greater voice—especially patients at the margins of healthcare who may be…- Live
- Paper
- Reflections on the ELSI field
- Genetic testing and screening
-
Video
ELSIcon2022 Paper: Attitudes toward and actual uptake of genetic testing among a nationally representative sample of middle-to-older aged U.S. adults
ELSIcon2022 • Paper • May 31, 2022 Drew Blasco, Sara Feldman, J. Scott Roberts Understanding factors that influence genetic testing decisions among older adults is important given emerging…- Live
- Paper
- Uptake of genetic testing
- Genetic testing and screening
-
Video
ELSIcon2022 Panel: Beyond the Binary: A Panel Discussion About Gender, Genomics, and Justice
ELSIcon2022 • Panel Session 3 • May 31, 2022 Leila Jamal, Tala Berro, Kellan Baker, Kimberly Zayhowski The term gender diversity refers to a spectrum of identities that exist on a continuum…- Live
- Panel
- Stigma and discrimination
- health disparities
-
Video
ELSIcon2022 Paper: Challenges in Providing Genetic Risk Information to At-Risk Relatives of Patients Who are Deceased: Experiences of the Genetic Risk Analysis in Ovarian Cancer (GRACE) Study
ELSIcon2022 • Paper • May 31, 2022 Sandra Soo-Jin Lee, Jessica Martucci, Yolanda Prado, Tia Kauffman, Larissa White, Nora Henrikson, Heather Feigelson, Jessica Hunter Current guidelines…- Live
- Paper
- Disclosure of genetic risk information to relatives
- Genetic testing and screening
-
Video
ELSIcon2022 Paper: Sociodemographic diversity in clinical genomics research
ELSIcon2022 • Paper • May 31, 2022 Meghan Halley, Holly Tabor, Jennifer Young Background: Barriers to clinical genomics research participation are particularly critical for medically…- Live
- Paper
- Motivation to participate in research
- Patient-provider communication
-
Video
ELSIcon2022 Paper: The Biologization of Morality: Criminal Justice as a Matter of Public Health
ELSIcon2022 • Paper • May 31, 2022 Zachary Ascherl A growing wealth of literature explains criminal behavior in terms of its environmental, neurological, and genetic causes. Legal practitioners…- Live
- Paper
- Emerging technologies - public opinion and policy
- Law, regulation, and governance
-
Video
ELSIcon2022 Paper: When State Laws Conflict: Choice of Law Challenges in Multi-Site Research
ELSIcon2022 • Paper • May 31, 2022 Laura Beskow, Leslie Wolf Our previous research demonstrated that precision medicine research implicates numerous state laws, including human subjects…- Live
- Paper
- Laws and research sites
- precision medicine