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Selected Secondary Source Database, LawSeq℠
The LawSeq℠ team, overseen by co-principal investigators Susan Wolf, JD, Ellen Wright Clayton, MD, JD, and Frances Lawrenz, PhD, has curated this database of articles from journals and professional…- Genomics
- search tool
- LawSeq
- genomic laws
- legal resource
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Statement Archive, American Society of Human Genetics
The Statement Archive of the American Society of Human Genetics is a record of advocacy work by the organization for the purpose of promoting evidence based policies that benefit science, personal…- legislation
- statement
- statement archive
- Policy
- Public Health
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Position Statements, National Society of Genetic Counselors
Position Statements of National Society of Genetic Counselors (NSGC) reflect concrete applications of the Society's Code of Ethics and require a majority vote by the NSGC Board of Directors.- position statement
- Risk
- limitation
- genetic ethics
- implications
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Practice Guidelines, National Society of Genetic Counselors
The National Society of Genetic Counselors (NSGC) provides practice guidelines and resources on several topics, a Practice Guideline Development Manual and COI Disclosure Form, a list of topics for…- practice guideline
- manual
- evidence review
- disclosure survey
- expert review
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Policy Statements, American College of Medical Genetics and Genomics
The Advocacy Committee of the American College of Medical Genetics and Genomics (ACMG), chaired by Sheila Dobin, releases policy statements to promote the responsible application of genomics in…- genetic information
- points-to-consider
- policy statement
- consideration
- Recommendation
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Policy Statements, European Society of Human Genetics
The Public and Professional Policy Committee (PPPC) of the European Society of Human Genetics (ESHG), chaired by Francesca Forzano, discusses and issues statements on the responsible translation of…- Human Genetics
- Policy
- position statements
- Research
- debate
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History and Timeline of Events, National Human Genome Research Institute (NHGRI)
The National Human Genome Research Institute (NHGRI), which directs and funds genomics research at the National Institutes of Health (NIH), provides an annotated timeline of its history including its…- timeline
- NHGRI
- history
- genomic history
- Human Genome Project
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Oral History Collection, National Human Genome Research Institute (NHGRI)
The National Human Genome Institute’s Oral History Collection features video-recorded discussions with influential figures in the field of genomics and the history of the institute. Intended for…- oral history
- history of genomics
- NHGRI
- genomics history
- video
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Ethical, Legal, and Social Issues Archive, US Department of Energy (DOE)
Ethical, Legal, and Social Issues Archive, US Department of Energy (DOE) The United States Department of Energy (DOE), an integral partner to the National Institutes of Health (NIH) in the Human…- Human Genome Project
- fairness
- Privacy
- Stigmatization
- commercialization
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African Society of Human Genetics (AfSHG)
The African Society of Human Genetics (AfSHG) aims to equip the African scientific community and policymakers with the information and practical knowledge they need to contribute to genomics research…- AfSHG
- Africa
- African scientific community
- biomedical science